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为慢性阻塞性肺疾病患者提供姑息治疗的专业人员:定性研究。

Professionals delivering palliative care to people with COPD: qualitative study.

作者信息

Spence A, Hasson F, Waldron M, Kernohan W G, McLaughlin D, Watson B, Cochrane B, Marley A M

机构信息

Northern Ireland Hospice Care, Northern Ireland Hospice, Belfast.

出版信息

Palliat Med. 2009 Mar;23(2):126-31. doi: 10.1177/0269216308098804. Epub 2008 Oct 30.

Abstract

This article describes health and social care professionals' perceptions of palliative care and facilitators and barriers to the delivery of such care for patients with advanced chronic obstructive pulmonary disease. Health professionals participated in semi structured interviews and focus groups which were analysed using content analysis. According to participants, care of patients with chronic obstructive pulmonary disease is focused upon the management of symptoms, with emphasis focused predominately on an acute model of care. Key barriers towards the delivery of palliative care included the reluctance to negotiatie end-of-life decisions and a perceived lack of understanding among patients and carers regarding the illness trajectory. Consequently the delivery of palliative care was viewed as a specialist role rather than an integral component of care. There is a need for education and training for health and social care professions to plan and provide high quality end-of-life care.

摘要

本文描述了健康和社会护理专业人员对姑息治疗的看法,以及为晚期慢性阻塞性肺疾病患者提供此类护理的促进因素和障碍。卫生专业人员参与了半结构化访谈和焦点小组讨论,并采用内容分析法进行分析。根据参与者的说法,慢性阻塞性肺疾病患者的护理重点是症状管理,主要侧重于急性护理模式。提供姑息治疗的主要障碍包括不愿协商临终决策,以及患者和护理人员对疾病发展轨迹的认知不足。因此,姑息治疗被视为一种专科角色,而非护理的一个组成部分。健康和社会护理专业人员需要接受教育和培训,以规划和提供高质量的临终护理。

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