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银屑病和银屑病关节炎患者的生活质量,特别关注耻辱感体验。

Quality of life in patients with psoriasis and psoriasis arthritis with a special focus on stigmatization experience.

作者信息

Schmid-Ott Gerhard, Schallmayer Sabine, Calliess Iris Tatjana

机构信息

Department of Psychosomatic Medicine, Hanover Medical School, D-30625 Hanover, Germany.

出版信息

Clin Dermatol. 2007 Nov-Dec;25(6):547-54. doi: 10.1016/j.clindermatol.2007.08.008.

DOI:10.1016/j.clindermatol.2007.08.008
PMID:18021891
Abstract

Negative impact of psoriasis and psoriasis arthritis on quality of life is a central consequence of these diseases. Feelings of stigmatization might, for example, already emerge with only small patches of skin being affected. Empirical data indicate that treating dermatologists should address possible negative effects elicited by problematic encounters with the public and in sexual relationships even if the severity of the disease is low, because lesions on invisible parts of the body can already cause serious adverse impairment. Such psychosocial consequences can be reduced by attending a self-help organization and by taking part in an interdisciplinary patient education program led by dermatologists.

摘要

银屑病和银屑病关节炎对生活质量的负面影响是这些疾病的核心后果。例如,仅出现小块皮肤受累时,就可能已经产生耻辱感。实证数据表明,即使疾病严重程度较低,皮肤科治疗医生也应处理因与公众接触及性关系中出现的问题所引发的可能负面影响,因为身体隐蔽部位的皮损可能已造成严重的不良损害。参加自助组织并参与由皮肤科医生主导的跨学科患者教育项目,可以减轻此类社会心理后果。

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