Parsons-Suhl Karen, Johnson Mary E, McCann Judy J, Solberg Shirley
Memorial University of Newfoundland, St. John's, Newfoundland, Canada.
Qual Health Res. 2008 Jan;18(1):31-42. doi: 10.1177/1049732307308987.
A Heideggerian hermeneutical phenomenological research method was used to investigate the experience of memory loss in twelve individuals with early Alzheimer's disease or mild cognitive impairment. Data analysis proceeded as described by Diekelmann, Allen, and Tanner (1989), and incorporated the methods of Benner (1994), Thomas and Pollio (2002), and van Manen (1990). Three constitutive patterns with relational themes were identified. The first pattern, experiencing breakdown, consisted of two themes: awakening to breakdown and living with forgetting. The second pattern, temporality, consisted of three themes: being in the nothing, forgetting the past, and looking ahead. The third pattern, managing forgetting, consisted of the themes: remembering with cues, writing things down, recognizing what made remembering better or worse, and using laughter. The finding show that early Alzheimer's disease is more than an illness of cognitive losses and that forgetting is significant in light of the meaning that it has within everyday life.
采用海德格尔诠释现象学研究方法,对12名早期阿尔茨海默病或轻度认知障碍患者的记忆丧失经历进行了调查。数据分析按照迪克尔曼、艾伦和坦纳(1989年)所述进行,并纳入了本纳(1994年)、托马斯和波利奥(2002年)以及范曼恩(1990年)的方法。识别出了三种具有关联主题的构成模式。第一种模式“经历崩溃”,包含两个主题:意识到崩溃和与遗忘共存。第二种模式“时间性”,由三个主题组成:处于虚无之中、遗忘过去和展望未来。第三种模式“应对遗忘”,包含以下主题:借助线索记忆、写下事情、认识到哪些因素使记忆变好或变差以及运用笑声。研究结果表明,早期阿尔茨海默病不仅仅是一种认知丧失的疾病,而且遗忘鉴于其在日常生活中的意义也很重要。