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针对瑞典瘙痒性银屑病患者的焦点小组访谈

Focus groups in Swedish psoriatic patients with pruritus.

作者信息

Amatya Beni, Nordlind Klas

机构信息

Unit of Dermatology and Venereology, Department of Medicine, Karolinska University Hospital, Solna, Sweden.

出版信息

J Dermatol. 2008 Jan;35(1):1-5. doi: 10.1111/j.1346-8138.2007.00402.x.

DOI:10.1111/j.1346-8138.2007.00402.x
PMID:18181768
Abstract

Pruritus is a common complaint among patients of psoriasis vulgaris of the chronic plaque type. Despite a high prevalence of pruritus in psoriasis, limited information is available on this subject. The aim was to assess patients' perspective of pruritus in psoriasis vulgaris of plaque type, by using focus groups. A total of 20 patients with chronic plaque psoriasis participated in focus group discussions and were divided into five groups, on different occasions. Themes for the discussion were introduced and moderated by the investigators. The focus groups created a proper atmosphere for discussion on different aspects of pruritus in psoriasis. The patients regarded themselves able to discriminate between pruritus and pain. Pruritus was most common on the lower back and legs. Stress, cold weather and skin dryness were seen as the most common worsening factors for pruritus. Sunbathing and application of emollients with or without steroids and calcipotriol cream were suggested as factors that relieved pruritus. Quality of life was affected in some patients, for instance they were reluctant to participate in social activities. Patients' perspectives on pruritus in psoriasis were important for a better understanding of this sensation. The information collected from the focus group discussions might be useful for further study in this area.

摘要

瘙痒是慢性斑块型寻常型银屑病患者的常见主诉。尽管银屑病中瘙痒的患病率很高,但关于这一主题的信息有限。目的是通过焦点小组来评估斑块型寻常型银屑病患者对瘙痒的看法。共有20名慢性斑块状银屑病患者参加了焦点小组讨论,并在不同场合被分成五组。讨论主题由研究人员介绍并主持。焦点小组为讨论银屑病瘙痒的不同方面营造了合适的氛围。患者认为自己能够区分瘙痒和疼痛。瘙痒在背部下方和腿部最为常见。压力、寒冷天气和皮肤干燥被视为瘙痒最常见的加重因素。日光浴以及使用含或不含类固醇和卡泊三醇乳膏的润肤剂被认为是缓解瘙痒的因素。一些患者的生活质量受到影响,例如他们不愿参加社交活动。患者对银屑病瘙痒的看法对于更好地理解这种感觉很重要。从焦点小组讨论中收集到的信息可能对该领域的进一步研究有用。

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