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在产前筛查决策背景下重新思考自主性。

Rethinking autonomy in the context of prenatal screening decision-making.

作者信息

García Elisa, Timmermans Danielle R M, van Leeuwen Evert

机构信息

Department of Metamedica, VU University Medical Center, Amsterdam, The Netherlands.

出版信息

Prenat Diagn. 2008 Feb;28(2):115-20. doi: 10.1002/pd.1920.

DOI:10.1002/pd.1920
PMID:18186151
Abstract

OBJECTIVES

Answering the question: Does the offer of prenatal screening impede women in making autonomous choices?

METHODS

Semi-structured interviews with 59 women to whom a prenatal screening test was offered and who were in the process of taking a decision.

RESULTS

Women described the offer as confronting but expressed a positive attitude towards screening and considered the offer as an opportunity for making up their minds about testing. Participants stated that they took decisions freely to follow their individual perspectives. Nevertheless, they preferred to share the responsibility of taking decisions, and its consequences for other family members, with their partner and close persons.

CONCLUSIONS

The active offer of an unsolicited prenatal test need not be considered as an impediment for making an autonomous choice. The moral significance of prenatal testing is inseparably bound with the social context in which it is practiced. Influence from other persons and emotional reactions due to the test offer can be interpreted as supportive for making a choice. In clinical practice, testing should be timely offered in order to give women the opportunity of discussing their views with significant others. Caregivers should care for the emotions experienced by women so as to help them decide according to their values.

摘要

目的

回答以下问题:提供产前筛查是否会妨碍女性做出自主选择?

方法

对59名接受产前筛查检测且正在做决定的女性进行半结构化访谈。

结果

女性将该提议描述为具有挑战性,但对筛查表达了积极态度,并将此提议视为做出检测决定的一个契机。参与者表示他们自由地做出决定以遵循个人观点。然而,她们更愿意与伴侣及亲近的人分担做决定的责任及其对其他家庭成员的影响。

结论

主动提供未经请求的产前检测不必被视为做出自主选择的障碍。产前检测的道德意义与其实施的社会背景密不可分。他人的影响以及因检测提议产生的情绪反应可被理解为对做出选择的支持。在临床实践中,应及时提供检测,以便让女性有机会与重要他人讨论她们的观点。医护人员应关注女性所经历的情绪,以帮助她们根据自身价值观做出决定。

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