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针对有复杂医疗需求的儿童癌症幸存者的多学科护理模式。

A multidisciplinary model of care for childhood cancer survivors with complex medical needs.

作者信息

Carlson Claire A, Hobbie Wendy L, Brogna Melinda, Ginsberg Jill P

机构信息

Cancer Survivorship Program, The Children's Hospital of Philadelphia, PA 19104, USA.

出版信息

J Pediatr Oncol Nurs. 2008 Jan-Feb;25(1):7-13. doi: 10.1177/1043454207311741.

Abstract

Long-term survival for children with cancer is often achieved at a considerable cost in terms of medical and psychological sequelae. Although many survivors are well and require only routine follow-up and surveillance, a cohort of survivors require comprehensive management of complex, chronic medical issues by multiple subspecialists. For these survivors, care delivered within the context of an annual visit to a traditional hospital-based late effects clinic or by a primary care physician in the community is often not adequate. A specialized clinic was implemented at The Children's Hospital of Philadelphia that crosses disciplines and provides same-day, same-clinic access to oncology/survivorship, endocrinology, pulmonology, cardiology, nutrition, and psychology. This multidisciplinary approach supports clinical efficiency and fosters seamless patient-centered care both for patients with identified late effects and for those with the highest risk for problems because of intense treatment exposures. The model is described with a focus on clinic structure/process, clinical outcomes, and benefits to survivor, health care provider, and institution. The diverse roles for nursing within this model are highlighted.

摘要

癌症患儿的长期生存往往要付出巨大的医学和心理后遗症代价。虽然许多幸存者状况良好,仅需常规随访和监测,但有一部分幸存者需要多个专科医生对复杂的慢性医学问题进行综合管理。对于这些幸存者而言,在每年前往传统的医院晚期效应门诊就诊或由社区初级保健医生提供的护理,往往并不足够。费城儿童医院设立了一个跨学科的专科门诊,为患者提供当日、同科室的肿瘤学/幸存者关怀、内分泌学、肺病学、心脏病学、营养学及心理学服务。这种多学科方法提高了临床效率,为已确诊有晚期效应的患者以及因强化治疗暴露而面临最高问题风险的患者提供了无缝衔接的以患者为中心的护理。本文介绍了该模式,重点阐述了门诊结构/流程、临床结果以及对幸存者、医疗服务提供者和机构的益处。文中还强调了护理人员在该模式中的不同角色。

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