Maxwell C, Aggleton P, Warwick I
Thomas Coram Research Unit, Institute of Education, University of London, London, UK.
AIDS Care. 2008 Jan;20(1):72-9. doi: 10.1080/09540120701449120.
Although the 'Greater Involvement of People Living with or Affected by HIV/AIDS' (GIPA) principle was first articulated over a decade ago (UNAIDS, 1999), relatively few studies have examined the extent to which it is being implemented. A study was undertaken in three areas of England to establish the types of user involvement mechanisms in place for HIV-positive people to influence service and policy development. Drawing on group discussions with 38 people living with HIV and six HIV professionals across the three geographical research sites, as well as interviews with eight professionals with expertise in this area, this paper illustrates variability in opportunities for involvement. Also identified are a range of (innovative) methods for facilitating HIV-positive people's greater participation in service planning and delivery, as well as some of the challenges encountered by people living with HIV and service providers when implementing GIPA. The paper concludes by identifying some specific strategies for improving user involvement in HIV service provision.
尽管“让艾滋病毒感染者或受其影响者更多参与”(GIPA)原则早在十多年前就已提出(联合国艾滋病规划署,1999年),但相对较少的研究考察了该原则的实施程度。在英格兰的三个地区开展了一项研究,以确定为艾滋病毒呈阳性者设立的、用以影响服务和政策制定的用户参与机制类型。本文基于对三个地理研究地点的38名艾滋病毒感染者和六名艾滋病毒专业人员的小组讨论,以及对该领域八名专业人员的访谈,阐述了参与机会的差异。还确定了一系列(创新性)方法,以促进艾滋病毒呈阳性者更多地参与服务规划和提供,以及艾滋病毒感染者和服务提供者在实施GIPA时遇到的一些挑战。本文最后确定了一些改善用户参与艾滋病毒服务提供的具体策略。