Ragaccio Angela, Lombardo Antonino, Garrone Pamela
Infermiera SC, Qualità e Risk Management Ospedaliero, ASO S. Giovanni Battista di Torino.
Assist Inferm Ric. 2007 Oct-Dec;26(4):200-9.
Patients with head and neck cancer have complex long-lasting physical and psychosocial needs due to illness and treatment, and studies have shown deficiencies concerning support received.
To explore how satisfied head and neck cancer patients were with information provided about their illness and treatment, to identify areas of improvement.
Patients were interviewed about their experience, focusing on informational support received, involvement of relatives, and their satisfaction with information before and after the surgery. Interviews were tape recorded and transcribed and relevant meanings identified.
Thirty patients were interviewed. Patients were generally satisfied with information, however they report the difficulty of understanding what is happening to them, and identify a lack of information on side effects of treatments. They appreciate the straightforwardness of information and the involvement of an expert patient. Reactions and preferences vary across patients.
This study confirms the need for tailored information provision and highlights the problems and feelings of patients undergoing head and neck surgery, the impact of the intervention and patient's needs for information prior to treatment.
头颈癌患者由于疾病和治疗而有复杂且持久的身体和心理社会需求，并且研究表明他们在获得的支持方面存在不足。
探讨头颈癌患者对所提供的有关其疾病和治疗信息的满意程度，以确定改进的领域。
就患者的经历进行访谈，重点关注所获得的信息支持、亲属的参与情况以及他们在手术前后对信息的满意度。访谈进行录音和转录，并确定相关含义。
对30名患者进行了访谈。患者总体上对信息感到满意，然而他们表示难以理解自身所发生的情况，并指出缺乏有关治疗副作用的信息。他们赞赏信息的直白以及专家患者的参与。不同患者的反应和偏好各不相同。
本研究证实了提供量身定制信息的必要性，并突出了接受头颈手术患者的问题和感受、干预措施的影响以及患者在治疗前对信息的需求。
