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Should physicians warn patients' relatives of genetic risks?医生应该告知患者亲属基因风险吗？
CMAJ. 2008 Feb 26;178(5):593-5. doi: 10.1503/cmaj.070956.
2
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Should confidentiality in medicine be absolute?医学中的保密性应该是绝对的吗？
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A challenge to unqualified medical confidentiality.挑战不合格的医疗保密制度。
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Mother still knows best: cancer-related gene mutations, familial privacy, and a physician's duty to warn.母亲依然最具智慧：癌症相关基因突变、家族隐私与医生的警示义务
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'Is this knowledge mine and nobody else's? I don't feel that.' Patient views about consent, confidentiality and information-sharing in genetic medicine.“这些知识是我的，别人都没有吗？我不这么觉得。”患者对基因医学中知情同意、保密和信息共享的看法。
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Disclosing Genetic Information to Family Members About Inherited Cardiac Arrhythmias: An Obligation or a Choice?向家庭成员披露遗传性心律失常的基因信息：是一项义务还是一种选择？
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2012 European thyroid association guidelines for genetic testing and its clinical consequences in medullary thyroid cancer.2012 年欧洲甲状腺协会关于甲状腺髓样癌基因检测及其临床后果的指南。
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Informing family members of individuals with Lynch syndrome: a guideline for clinical geneticists.向 Lynch 综合征个体的家庭成员告知相关情况：临床遗传学家指南。
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Intrafamilial disclosure of risk for hereditary breast and ovarian cancer: points to consider.遗传性乳腺癌和卵巢癌风险在家族内的披露：需考虑的要点。
J Community Genet. 2013 Apr;4(2):203-14. doi: 10.1007/s12687-012-0132-y. Epub 2012 Dec 29.
10
Getting a head start: the importance of personal genetics education in high schools.提前起步：高中个人遗传学教育的重要性。
Yale J Biol Med. 2012 Mar;85(1):87-92. Epub 2012 Mar 29.

本文引用的文献

1
Clinical management recommendations for surveillance and risk-reduction strategies for hereditary breast and ovarian cancer among individuals carrying a deleterious BRCA1 or BRCA2 mutation.携带有害BRCA1或BRCA2突变个体的遗传性乳腺癌和卵巢癌监测及风险降低策略的临床管理建议。
J Obstet Gynaecol Can. 2007 Jan;29(1):45-60. doi: 10.1016/s1701-2163(16)32349-0.
2
Guidelines for disclosing genetic information to family members: from development to use.
Fam Cancer. 2006;5(1):103-16. doi: 10.1007/s10689-005-2581-5.
3
Genetic information and the family: are we our brother's keeper?遗传信息与家庭：我们是兄弟的守护者吗？
Trends Biotechnol. 2002 Feb;20(2):85-6. doi: 10.1016/s0167-7799(01)01879-0.

Should physicians warn patients' relatives of genetic risks?

作者信息

Lacroix Mireille, Nycum Gillian, Godard Béatrice, Knoppers Bartha Maria

机构信息

Centre de recherche en droit public, Université de Montréal, Montréal, Que.

出版信息

CMAJ. 2008 Feb 26;178(5):593-5. doi: 10.1503/cmaj.070956.

DOI:10.1503/cmaj.070956
PMID:18299550
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2244654/
Abstract
摘要