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成年智障者家庭的照料模式:自闭症成年患者家庭与唐氏综合征成年患者家庭的比较

The pattern of care in families of adults with a mental handicap: a comparison between families of autistic adults and Down syndrome adults.

作者信息

Holmes N, Carr J

机构信息

Department of Psychology, Kingston.

出版信息

J Autism Dev Disord. 1991 Jun;21(2):159-76. doi: 10.1007/BF02284757.

DOI:10.1007/BF02284757
PMID:1830876
Abstract

The pattern of care in 39 families with a mentally handicapped adult member, 20 with Down syndrome, 19 with autism, was studied. There were no significant differences between the mothers, the fathers, or the siblings of Down syndrome and autistic adults in the amount of help offered with physical care, domestic tasks, and supervision duties. However, the brunt of caring fell upon the mothers, with fathers helping mainly with supervision rather than physical care or domestic tasks. Siblings offered less help than fathers. The autistic subjects exhibited significantly more behavior problems. Methods of coping with problems differed: Parents of autistic adults were more likely to "give in" and less likely to tell the handicapped person to stop than parents of Down syndrome adults.

摘要

对39个有成年智障成员的家庭(其中20个家庭的成年智障成员患有唐氏综合征,19个家庭的成年智障成员患有自闭症)的照料模式进行了研究。在提供身体护理、家务劳动和监督职责方面,唐氏综合征成年患者和自闭症成年患者的母亲、父亲或兄弟姐妹所提供的帮助量没有显著差异。然而,照料的主要负担落在母亲身上,父亲主要在监督方面提供帮助,而非身体护理或家务劳动。兄弟姐妹提供的帮助比父亲少。自闭症患者表现出明显更多的行为问题。应对问题的方式有所不同:与唐氏综合征成年患者的父母相比,自闭症成年患者的父母更倾向于“屈服”,不太可能让残障人士停止行为。

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