Schiffman Joshua D, Chamberlain Lisa J, Palmer Laura, Contro Nancy, Sourkes Barbara, Sectish Theodore C
Division of Pediatric Hematology-Oncology, Stanford University School of Medicine, Palo Alto, California, USA.
J Palliat Med. 2008 Mar;11(2):164-70. doi: 10.1089/jpm.2007.0194.
The Pediatric Palliative Care Curriculum (PPCC) was introduced as a pilot study in response to the published need for increased pediatric education in end-of-life (EOL) care. The PPCC was designed to better train residents in EOL issues so they could become more comfortable and knowledgeable in caring for children and adolescents with life-threatening illnesses.
The PPCC consisted of six hour-long sessions run by a clinical psychologist, a licensed social worker, and faculty with experience in EOL care. The curriculum repeated every 6 weeks for 1 year. Residents in the training program at Stanford University rotating through oncology, pulmonology, and pediatric intensive care unit (PICU) were invited to attend. Session topics included: (1) personal coping skills, (2) being a caring professional, (3) recognizing cultural and familial differences, (4) pain management, (5) practical issues, and (6) meeting a bereaved parent. Pretest and posttest surveys with five-point Likert scale questions were used to measure curricular impact.
Statistically significant improvement was found in resident self-report of: feeling prepared to initiate do-not-resuscitate discussions (p </= 0.001), access to nonpharmacologic pain resources (p </= 0.005), exposure to role models who balance medical professionalism and expression of grief (p </= 0.005), ability to address dying patient anxiety (p </= 0.01), administer pain medications (p </= 0.01), initiate organ donation discussions (p </= 0.05), and discuss transition from curative to palliative care (p </= 0.05). Survey ratings for the following topics were unchanged: "expression of grief is unprofessional" and "residency stress prohibits the processing of and coping with grief."
Pediatric residents who participated in this pilot study felt they learned important skills in pediatric EOL care and enhanced their confidence in their ability to care for dying patients and their families. Interventions like the PPCC may be useful at other institutions and aid in the transition to competency-based training.
儿科姑息治疗课程(PPCC)作为一项试点研究被引入,以回应已发表的对加强临终关怀(EOL)儿科教育的需求。PPCC旨在更好地培训住院医师处理临终问题,使他们在照顾患有危及生命疾病的儿童和青少年时更加得心应手且知识渊博。
PPCC由临床心理学家、持牌社会工作者以及有临终关怀经验的教员主持的六次时长一小时的课程组成。该课程每6周重复一次,为期1年。邀请斯坦福大学培训项目中轮转至肿瘤学、肺病学和儿科重症监护病房(PICU)的住院医师参加。课程主题包括:(1)个人应对技巧,(2)成为有爱心的专业人员,(3)认识文化和家庭差异,(4)疼痛管理,(5)实际问题,以及(6)与失去亲人的父母会面。使用带有五点李克特量表问题的前测和后测调查来衡量课程的影响。
在住院医师的自我报告中发现了具有统计学意义的改善:在准备发起“不要复苏”讨论方面感到有准备(p≤0.001)、获得非药物性疼痛资源(p≤0.005)、接触到平衡医学专业精神和悲伤表达的榜样(p≤0.005)、处理临终患者焦虑的能力(p≤0.01)、给予止痛药物(p≤0.01)、发起器官捐赠讨论(p≤0.05)以及讨论从治愈性护理向姑息治疗的转变(p≤0.05)。以下主题的调查评分没有变化:“悲伤表达是不专业的”以及“住院医师压力妨碍了对悲伤的处理和应对”。
参与这项试点研究的儿科住院医师认为他们在儿科临终关怀方面学到了重要技能,并增强了照顾临终患者及其家人的能力信心。像PPCC这样的干预措施可能在其他机构有用,并有助于向基于能力的培训过渡。