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应对精神分裂症:配偶需要了解什么?

Coping with schizophrenia: what does the spouse need to know?

作者信息

Gaskill D, Cooney H

出版信息

Aust J Adv Nurs. 1991;9(2):10-5.

PMID:1840734
Abstract

The increasing dependence on community-based care for individuals with major mental health disorders such as schizophrenia has led to concern about the physical, emotional and social effects on the family, however the nature and extent of these effects, particularly for spouses/partners, are not generally known. This paper presents descriptive findings from a pilot study designed to explore the phenomenon of caregiving from the perspective of partners living with a schizophrenia sufferer. Data were collected via in-depth interviews with 14 participants, 12 of whom were still living with their partner. The interviews were tape recorded and subsequently transcribed for thematic analysis with The Ethnograph software. While a number of significant themes were identified, this paper focuses on partners' understanding of schizophrenia and other information needs. It concludes that psychiatric nurses have a significant role to play in educating family members about the illness and its long term consequences.

摘要

对患有精神分裂症等严重精神疾病的患者越来越依赖社区护理,这引发了人们对其对家庭的身体、情感和社会影响的担忧,然而,这些影响的性质和程度,尤其是对配偶/伴侣的影响,通常并不为人所知。本文介绍了一项试点研究的描述性结果,该研究旨在从与精神分裂症患者共同生活的伴侣的角度探索护理现象。通过对14名参与者进行深入访谈收集数据,其中12人仍与伴侣生活在一起。访谈进行了录音,随后转录以便使用The Ethnograph软件进行主题分析。虽然确定了一些重要主题,但本文重点关注伴侣对精神分裂症的理解和其他信息需求。研究得出结论,精神科护士在教育家庭成员了解该疾病及其长期后果方面可发挥重要作用。

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Aust J Adv Nurs. 1991;9(2):10-5.
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[Recovery from persons living with schizophrenia].[精神分裂症患者的康复]
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引用本文的文献

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Information and decision-making needs of psychiatric patients: the perspective of relatives.精神病患者的信息及决策需求:亲属的视角
PeerJ. 2017 Jul 6;5:e3378. doi: 10.7717/peerj.3378. eCollection 2017.
2
A mixed methods exploration of family involvement in medical care for older adults with serious mental illness.混合方法探索家庭在老年严重精神疾病患者医疗中的参与。
Int J Psychiatry Med. 2014;48(2):121-33. doi: 10.2190/PM.48.2.e.
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Information and decision-making needs among people with mental disorders: a systematic review of the literature.
精神障碍患者的信息与决策需求:文献系统综述
Health Expect. 2015 Dec;18(6):1856-72. doi: 10.1111/hex.12251. Epub 2014 Aug 21.