Kelly Kimberly M, Porter Kyle, Remy Amber, Westman Judith A
Human Cancer Genetics, Ohio State University, 410 W. 12th Avenue, Columbus, OH 43210, USA.
J Genet Couns. 2008 Jun;17(3):274-82. doi: 10.1007/s10897-007-9146-8. Epub 2008 May 17.
This article examines the impact of providing personalized familial cancer risk assessments with the Jameslink Cancer Risk Assessment Tool. Users of the Jameslink (N = 166) at eight community health fairs completed a survey including demographic, psychosocial and behavioral variables to better understand responses to the Jameslink. No differences were found between whites and those of other races for variables of interest, indicating suitability of the Jameslink for diverse populations. Those with higher Jameslink-assessed risk had higher perceived risk of cancer. Approximately half (53.8%) reported that they would speak to their physician about their Jameslink-assessed risk. A regression found Jameslink-assessed risk, cancer worry, and perceived risk of cancer predicted intentions to speak to a physician about their risk. In addition, open-ended data provided suggestions to improve the Jameslink. Changes in content and format were suggested; however most were happy with the program and encouraged its promotion. The lack of findings for differences as a function of race bolsters the use of computerized Cancer Risk Assessment Tools in diverse communities. The positive feedback of users and the close association between cancer risk assessment, perceived risk, and intention to speak to a physician are supportive of continued use and development of Cancer Risk Assessment Tools in the community to promote awareness of cancer risk.
本文探讨了使用Jameslink癌症风险评估工具提供个性化家族癌症风险评估的影响。在八个社区健康博览会上使用Jameslink的用户(N = 166)完成了一项调查,包括人口统计学、心理社会和行为变量,以更好地了解对Jameslink的反应。在感兴趣的变量方面,白人与其他种族之间未发现差异,这表明Jameslink适用于不同人群。Jameslink评估风险较高的人患癌症的感知风险也较高。约一半(53.8%)的人报告称他们会就Jameslink评估的风险与医生交谈。一项回归分析发现,Jameslink评估的风险、癌症担忧和患癌症的感知风险可预测与医生谈论其风险的意愿。此外,开放式数据为改进Jameslink提供了建议。有人建议改变内容和形式;然而,大多数人对该项目感到满意并鼓励推广。未发现因种族而异的结果,这支持了在不同社区使用计算机化癌症风险评估工具。用户的积极反馈以及癌症风险评估、感知风险和与医生交谈意愿之间的密切关联,支持在社区持续使用和开发癌症风险评估工具,以提高对癌症风险的认识。