Laing Ian A, Freer Yvonne
Simpson Centre for Reproductive Health, Royal Infirmary of Edinburgh, Edinburgh, UK.
Semin Fetal Neonatal Med. 2008 Oct;13(5):305-9. doi: 10.1016/j.siny.2008.03.009. Epub 2008 May 19.
Where possible, both parents should be present whenever bad news is broken. Professional calm and carefully chosen words are essential. Staff must be aware of cultural and religious beliefs of the family, and should be cognizant of linguistic and educational capabilities. The unexpected collapse and death of an infant is rare but is exceptionally demanding on communication skills. Time must be given for the family to ask questions, and staff should acknowledge the tragedy and the uncertainty, but should convey a determination to discover the truth for the family. A predictable deterioration allows staff and family to work together towards a "guided consensus" over future management. Compassionate care involves time, comfort and dignity for the child and parents. It is crucial for the family to receive empathetic support from senior nursing and medical staff. Mementoes may help the grieving process. Necropsy may also play an important role in allowing the families to rebuild their lives.
只要有可能，在告知坏消息时父母双方都应在场。专业的冷静态度和精心措辞至关重要。工作人员必须了解家庭的文化和宗教信仰，并且应该认识到其语言和教育能力。婴儿意外夭折的情况很少见，但对沟通技巧的要求极高。必须给家属留出提问的时间，工作人员应该承认这一悲剧以及不确定性，但要表达出为家属查明真相的决心。可预见的病情恶化使工作人员和家属能够就未来的治疗共同达成“指导性共识”。富有同情心的护理包括为患儿及其父母留出时间、给予慰藉并维护尊严。让资深护理和医务人员给予家属共情支持至关重要。纪念品可能有助于悲伤过程。尸检在帮助家属重新生活方面也可能发挥重要作用。
