Valimaki Maritta, Anttila Minna, Hatonen Heli, Koivunen Marita, Jakobsson Tiina, Pitkanen Anneli, Herrala Jaakko, Kuosmanen Lauri
Department of Nursing Science, University of Turku, Finland.
Inform Health Soc Care. 2008 Jun;33(2):113-23. doi: 10.1080/17538150802127207.
Schizophrenia is a serious mental illness requiring self-management skills and information about the illness, its treatment, and where to get help with daily routines. Despite the systematic development of computer-based approaches in mental health, less systematic development of such methods can be found for patients with schizophrenia or psychosis.
The aim is to describe the design and development process of patient-centered computer-based support system (Mieli.Net portal) for patients with schizophrenia spectrum psychoses.
The process with a mixed methods approach includes four phases: analysis of users' needs, development of key patient information areas, development of a software prototype and to pilot the portal, and user evaluation by health care staff.
The computer-based patient support system is a promising health-promoting service to schizophrenic patients. It is important, that users of technology are involved in the development process, which will ensure that sites are user-friendly, information can be personalized, and mental patients' voices are heard in the development of patient education.
The effectiveness needs to be evaluated carefully in future clinical trials. This will offer valuable information for policymakers, organizations and health care practitioners about the usability of web-based patient education in the area of mental health care.
精神分裂症是一种严重的精神疾病，患者需要自我管理技能以及有关该疾病、其治疗方法以及日常事务求助途径的信息。尽管心理健康领域基于计算机的方法有系统的发展，但针对精神分裂症或精神病患者的此类方法的系统性发展较少。
旨在描述针对精神分裂症谱系精神病患者的以患者为中心的基于计算机的支持系统（Mieli.Net门户网站）的设计与开发过程。
采用混合方法的过程包括四个阶段：分析用户需求、开发关键患者信息领域、开发软件原型并对门户网站进行试点，以及由医护人员进行用户评估。
基于计算机的患者支持系统对精神分裂症患者而言是一项有前景的促进健康服务。重要的是，技术使用者要参与到开发过程中，这将确保网站便于用户使用、信息可个性化定制，并且在患者教育的开发过程中能听到精神病患者的声音。
未来的临床试验需要仔细评估其有效性。这将为政策制定者、组织和医护人员提供有关心理健康护理领域基于网络的患者教育可用性的宝贵信息。
