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“我不会把自己当作患者”:“幸福安康”环境对接受家族性癌症风险咨询者的重要性

"I wouldn't classify myself as a patient": the importance of a "well-being" environment for individuals receiving counseling about familial cancer risk.

作者信息

Phelps Ceri, Horrigan Debra, Protheroe Liwsi Kim, Hopkin Janina, Jones Wendy, Murray Alexandra

机构信息

Institute of Medical Genetics, School of Medicine, Cardiff University, SAC Building, Cardiff, Wales CF14 4XN, UK.

出版信息

J Genet Couns. 2008 Aug;17(4):394-405. doi: 10.1007/s10897-008-9158-z. Epub 2008 Jul 8.

DOI:10.1007/s10897-008-9158-z
PMID:18607702
Abstract

Many individuals receiving genetic counseling are healthy with no need for clinical cancer services. We have recently relocated our cancer genetic clinic to a small house on the outskirts of a hospital site which incorporates many elements proven to be important in creating a "well-being" environment. This study explored participants' perceptions of such an environment. Eleven semi-structured telephone interviews were conducted with women who had attended the new cancer genetic clinic. All were at high risk of familial cancer, five were gene carriers and three had a personal diagnosis of cancer. The new clinic was perceived to be less medical and more relaxing than other clinics, encouraged other family members to attend in support of the attendee and did not appear to impede information comprehension. The importance of not being made to feel like an ill patient was apparent. A desire for a quiet area allowing time for reflection whilst waiting for, and following, counseling was identified. A poorly designed counseling area could reduce the quality of the interaction between patient and counselor. Consideration of specific environmental design features may promote individuals' well-being and make those attending genetic counseling feel less like "patients." Larger studies should seek to explore further the potential associations between factors such as environmental design, psychological well-being and comprehension of risk information.

摘要

许多接受遗传咨询的人身体健康,无需临床癌症服务。我们最近将癌症遗传诊所迁至医院院区 outskirts 一所小房子里,该诊所融入了许多已被证明对营造“幸福”环境很重要的元素。本研究探讨了参与者对这样一个环境的看法。我们对参加新癌症遗传诊所的女性进行了 11 次半结构化电话访谈。她们均有患家族性癌症的高风险,其中 5 人是基因携带者,3 人已被确诊患有癌症。与其他诊所相比,新诊所给人的感觉不那么像医疗机构,更让人放松,它鼓励其他家庭成员陪同患者前来,而且似乎并未妨碍信息理解。不让人感觉自己是个患病患者这一点很重要。有人提出希望有一个安静的区域,以便在等待咨询和咨询之后有时间进行思考。设计不佳的咨询区域可能会降低患者与咨询师之间互动交流的质量。考虑特定的环境设计特点可能会促进个人的幸福,并让那些接受遗传咨询的人感觉自己不那么像“患者”。规模更大的研究应进一步探索环境设计、心理健康和风险信息理解等因素之间的潜在关联。

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