Petruccio Claudia, Mills Shaw Kenna R, Boughman Joann, Fernandez Carlos, Harlow Ilana, Kruesi Margaret, Kyler Penny, Lloyd-Puryear Michele A, O'Leary James, Skillman Amy, Terry Sharon, McKain Fredrika
Institute for Cultural Partnerships, Harrisburg, PA 17110, USA.
Community Genet. 2008;11(6):343-51. doi: 10.1159/000133306. Epub 2008 Aug 5.
The importance of family health history data in health care is widely acknowledged. Few individuals report having collected this information from their own family.
This project implemented a community-based approach to design and pilot a linguistically and culturally appropriate family health history collection toolkit for two minority populations in Harrisburg, Pa.
The toolkit relied on oral traditions and family stories as a way to successfully introduce genetics education and family health history to these populations. Participants not only found the tool engaging and culturally appropriate, they were also able to obtain information that they were likely to share with their physician.
While limited in scope, this project provides a model to other communities for the design, pilot testing, and implementation of a community-based public health initiative regarding family health histories.
家庭健康史数据在医疗保健中的重要性已得到广泛认可。很少有人报告从自己的家庭中收集过这些信息。
本项目采用基于社区的方法，为宾夕法尼亚州哈里斯堡的两个少数族裔群体设计并试点一个语言和文化适宜的家庭健康史收集工具包。
该工具包依靠口述传统和家庭故事，成功地向这些人群介绍了遗传学教育和家庭健康史。参与者不仅觉得该工具很有吸引力且符合文化习惯，还能够获取可能会与医生分享的信息。
尽管范围有限，但本项目为其他社区设计、试点测试和实施基于社区的家庭健康史公共卫生倡议提供了一个模式。
