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本文引用的文献

1
Lost in Translation? A Comparison of Cancer-Genetics Reporting in the Press Release and its Subsequent Coverage in Lay Press.翻译有误?新闻稿中癌症遗传学报告与其随后在大众媒体中的报道对比
Sci Commun. 2009 Jun;30(4):453-474. doi: 10.1177/1075547009332649.
2
Clinical use of the Surgeon General's "My Family Health Portrait" (MFHP) tool: opinions of future health care providers.美国卫生局局长的“我的家庭健康画像”(MFHP)工具的临床应用:未来医疗服务提供者的看法。
J Genet Couns. 2011 Oct;20(5):510-25. doi: 10.1007/s10897-011-9381-x. Epub 2011 Jun 24.
3
Primary care physicians' use of family history for cancer risk assessment.初级保健医生对家族史用于癌症风险评估的使用情况。
BMC Fam Pract. 2010 Jun 3;11:45. doi: 10.1186/1471-2296-11-45.
4
Family history in public health practice: a genomic tool for disease prevention and health promotion.家族史在公共卫生实践中的应用:疾病预防和健康促进的基因组工具。
Annu Rev Public Health. 2010;31:69-87 1 p following 87. doi: 10.1146/annurev.publhealth.012809.103621.
5
Primary care providers' responses to patient-generated family history.基层医疗服务提供者对患者提供的家族病史的反应。
J Genet Couns. 2010 Feb;19(1):84-96. doi: 10.1007/s10897-009-9264-6. Epub 2009 Oct 24.
6
Familial risk for common diseases in primary care: the Family Healthware Impact Trial.初级保健中常见疾病的家族风险:家庭健康影响试验
Am J Prev Med. 2009 Jun;36(6):506-14. doi: 10.1016/j.amepre.2009.03.002.
7
Developing Family Healthware, a family history screening tool to prevent common chronic diseases.开发家庭健康软件,一种用于预防常见慢性病的家族病史筛查工具。
Prev Chronic Dis. 2009 Jan;6(1):A33. Epub 2008 Dec 15.
8
Subjects matter: a survey of public opinions about a large genetic cohort study.主题事项:关于一项大型基因队列研究的公众意见调查。
Genet Med. 2008 Nov;10(11):831-9. doi: 10.1097/GIM.0b013e31818bb3ab.
9
Healthy choices through family history: a community approach to family history awareness.通过家族病史做出健康选择:一种提高家族病史意识的社区方法。
Community Genet. 2008;11(6):343-51. doi: 10.1159/000133306. Epub 2008 Aug 5.
10
GINA: making it safe to know what's in your genes.吉娜:让了解自身基因信息变得安全。
J Clin Invest. 2008 Jul;118(7):2369. doi: 10.1172/JCI36366.

一项关于癌症与遗传学知识及信念的随访社区调查。

A Follow-Up Community Survey of Knowledge and Beliefs About Cancer and Genetics.

作者信息

Sweeney Shannon M, Hastrup Janice L, Hyland Andrew, Rivard Cheryl

机构信息

Syracuse University, 430 Huntington Hall, Syracuse, NY, 13244-2340, USA.

University at Buffalo, Amherst, NY, USA.

出版信息

J Cancer Educ. 2016 Jun;31(2):253-60. doi: 10.1007/s13187-015-0856-6.

DOI:10.1007/s13187-015-0856-6
PMID:25976378
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC4644694/
Abstract

The purpose of this study is to assess changes since the launch of the US Surgeon General's campaign in the public's beliefs about the role of genetics in the etiology of cancer, as well as changes in recording family health history. We conducted a survey of 480 Western New York adults, assessing: (1) experiences with cancer, (2) beliefs about cancer and genetics, and (3) practices of recording family health history. Most respondents were aware of the importance of family history. The sample also showed increased knowledge about cancer and genetics compared with a previous survey. However, only 7 % kept written records that included medical conditions, which was not different from a previous survey. Time constraints, apathy, and reluctance to find out negative health information were the most reported barriers. Results suggest a need for continued education of the public, with increased emphasis on written family health records.

摘要

本研究的目的是评估自美国卫生局局长发起运动以来,公众对癌症病因中基因作用的看法的变化,以及记录家族健康史方面的变化。我们对纽约西部的480名成年人进行了一项调查,评估:(1)癌症经历;(2)对癌症和基因的看法;(3)记录家族健康史的做法。大多数受访者意识到家族史的重要性。与之前的调查相比,该样本显示出对癌症和基因的了解有所增加。然而,只有7%的人保留了包含医疗状况的书面记录,这与之前的调查没有差异。时间限制、冷漠以及不愿了解负面健康信息是最常被提及的障碍。结果表明有必要继续对公众进行教育,同时更加重视书面的家族健康记录。