Williams Beverly R, Woodby Lesa L, Bailey F Amos, Burgio Kathryn L
Birmingham/Atlanta Geriatric Research, Education, and Clinical Center (GRECC), Department of Veterans Affairs Medical Center, 700 South 19th Street, 11-G, Birmingham, Alabama, USA.
Death Stud. 2008;32(3):197-236. doi: 10.1080/07481180701881297.
After-death research with next-of-kin can enhance our understanding of end-of-life care and translate into better services for dying persons and their survivors. This article describes ethical and methodological issues that emerged in a pilot of a face-to-face interview guide designed to elicit next-of-kin's perceptions of end-of-life care. The pilot study was part of a larger Veterans Affairs (VA) Health Services Research protocol to improve end-of-life care in VA Medical Centers. By deconstructing the research process from an ethical perspective and engaging in critical self-assessment, the authors aim to inform other researchers of potential problems involved in after-death research with next-of-kin.
与近亲进行的死亡后研究可以增进我们对临终关怀的理解,并转化为为临终者及其幸存者提供更好的服务。本文描述了在一项旨在引出近亲对临终关怀看法的面对面访谈指南试点中出现的伦理和方法问题。该试点研究是退伍军人事务部(VA)一项更大的卫生服务研究协议的一部分,该协议旨在改善VA医疗中心的临终关怀。通过从伦理角度解构研究过程并进行批判性自我评估,作者旨在告知其他研究人员与近亲进行死亡后研究中可能涉及的潜在问题。