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癫痫患儿父母的焦虑与生活质量

Parental anxiety and quality of life of epileptic children.

作者信息

Li Yong, Ji Cheng-Ye, Qin Jiong, Zhang Zhi-Xiang

机构信息

Institute of Child and Adolescent Health, Peking University Health Science Center, Beijing 100083, China.

出版信息

Biomed Environ Sci. 2008 Jun;21(3):228-32. doi: 10.1016/S0895-3988(08)60034-3.

Abstract

OBJECTIVE

To investigate the prevalence of parental anxiety associated with epileptic children, and to explore whether and how this specific condition affects children's quality of life (QOL), and what are the significant determinants for parental anxiety.

METHODS

Three hundred and forty parents whose children were affected with known epilepsy were enrolled in the study. Questionnaires for quality of life in childhood epilepsy (QOLCE), and hospital anxiety and depression (HAD) of parents were used to collect demographic data of both children and their parents, as well as clinical manifestations of epilepsy and family status.

RESULTS

Parental anxiety (of any severity) was observed in 191 subjects at interview, giving a prevalence rate of 56.2%. Of the 191 subjects, 18.5% reported mild anxiety, 24.4% moderate anxiety, and 13.2% severe anxiety. Factors associated with parental anxiety included frequency of seizure in children, average monthly income per person and parents' knowledge about epilepsy (P < 0.05). Parental anxiety significantly (P = 0.000) correlated with quality of life of children with epilepsy.

CONCLUSION

Parents of children with epilepsy are at high risk of having anxiety. Factors associated with parental anxiety originate both from children and from parents. Parental anxiety is significantly related with children's QOL. It is important for experts concerned to recognize such a relationship to improve the QOL of children and their parents.

摘要

目的

调查癫痫患儿家长焦虑症的患病率,探讨这种特定情况是否以及如何影响患儿的生活质量(QOL),以及家长焦虑的重要决定因素是什么。

方法

招募了340名其子女患有已知癫痫的家长参与研究。使用儿童癫痫生活质量问卷(QOLCE)以及家长的医院焦虑抑郁量表(HAD)来收集儿童及其家长的人口统计学数据、癫痫的临床表现和家庭状况。

结果

在访谈中观察到191名受试者存在家长焦虑(任何严重程度),患病率为56.2%。在这191名受试者中,18.5%报告有轻度焦虑,24.4%有中度焦虑,13.2%有重度焦虑。与家长焦虑相关的因素包括患儿癫痫发作频率、人均月收入以及家长对癫痫的了解程度(P<0.05)。家长焦虑与癫痫患儿的生活质量显著相关(P = 0.000)。

结论

癫痫患儿的家长患焦虑症的风险很高。与家长焦虑相关的因素既来自患儿,也来自家长自身。家长焦虑与患儿的生活质量显著相关。相关专家认识到这种关系对于提高患儿及其家长的生活质量很重要。

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