Williams Jane, Steel Chris, Sharp Gregory B, DelosReyes Emily, Phillips Tonya, Bates Stephen, Lange Bernadette, Griebel May L
Department of Pediatrics, University of Arkansas for Medical Sciences, Little Rock, AK, USA.
Epilepsy Behav. 2003 Oct;4(5):483-6. doi: 10.1016/s1525-5050(03)00159-8.
Parental beliefs and attitudes concerning epilepsy may significantly impact adjustment and quality of life for both the child and family. The purpose of the present study was to examine the relationship between parental anxiety and quality of life in pediatric patients with ongoing epilepsy. Subjects were parents (n=200) of children between the ages of 6 and 16 years who had been diagnosed and treated for epilepsy for at least 1 year. Parents were given quality of life and anxiety questionnaires during the child's clinic visit. A stepwise regression analysis suggested that severity of comorbid conditions, parental anxiety, seizure control, and number of medications were significantly associated with quality of life for these children. Parents with increased anxiety whose children had poorly controlled seizures and a comorbid disability were found to have diminished quality of life.
父母对癫痫的信念和态度可能会对孩子及其家庭的适应能力和生活质量产生重大影响。本研究的目的是探讨患有持续性癫痫的儿科患者的父母焦虑与生活质量之间的关系。研究对象为6至16岁已被诊断患有癫痫并接受治疗至少1年的儿童的父母（n = 200）。在孩子门诊就诊期间，为父母发放了生活质量和焦虑问卷。逐步回归分析表明，合并症的严重程度、父母焦虑、癫痫控制情况和药物数量与这些孩子的生活质量显著相关。研究发现，孩子癫痫控制不佳且伴有合并症残疾的焦虑程度增加的父母，其生活质量会下降。
