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回避问题:患者与潜在活体肾供体的(未)沟通

Avoiding the issue: patients' (non)communication with potential living kidney donors.

作者信息

Kranenburg Leonieke W, Richards Martin, Zuidema Willij C, Weimar Willem, Hilhorst Medard T, IJzermans Jan N M, Passchier Jan, Busschbach Jan J V

机构信息

Erasmus University Medical Centre, Department of Medical Psychology & Psychotherapy, Rotterdam, The Netherlands.

出版信息

Patient Educ Couns. 2009 Jan;74(1):39-44. doi: 10.1016/j.pec.2008.07.028. Epub 2008 Aug 26.

DOI:10.1016/j.pec.2008.07.028
PMID:18752913
Abstract

OBJECTIVE

Kidney transplantation with a living donor has proved to be an effective solution for kidney patients on the waiting list for transplantation. Nevertheless, it may be difficult to find a living kidney donor. The purpose of this explorative study is to investigate how kidney transplant candidates may, or may not, find a living donor in the Netherlands.

METHODS

We compared a group of 42 patients who did not find a living donor with a group of 42 patients who did, using semi-structured interviews.

RESULTS

We found that, although almost all patients recognized the advantages of living kidney donation and were willing to accept the offer of a living kidney donor, many found it very difficult to ask a potential donor directly. This was true for both groups.

CONCLUSION

Patients may gain from professional support to deal with this situation in ways that balance their medical needs and their personal relationships.

PRACTICE IMPLICATIONS

Support programs should be developed to assist patients in developing strategies for discussing living kidney donation with potential donors.

摘要

目的

事实证明,活体肾移植是等待移植的肾病患者的有效解决方案。然而,找到活体肾供体可能很困难。这项探索性研究的目的是调查荷兰的肾移植候选人如何找到或无法找到活体供体。

方法

我们通过半结构化访谈,将一组42名未找到活体供体的患者与一组42名找到活体供体的患者进行了比较。

结果

我们发现,尽管几乎所有患者都认识到活体肾捐赠的好处,并愿意接受活体肾供体的捐赠,但许多人发现直接询问潜在供体非常困难。两组都是如此。

结论

患者可能会从专业支持中受益,以便以平衡其医疗需求和个人关系的方式应对这种情况。

实践意义

应制定支持计划,帮助患者制定与潜在供体讨论活体肾捐赠的策略。

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