Beckjord Ellen Burke, Arora Neeraj K, McLaughlin Wendy, Oakley-Girvan Ingrid, Hamilton Ann S, Hesse Bradford W
RAND Corporation, Pittsburgh, PA 15213, USA.
J Cancer Surviv. 2008 Sep;2(3):179-89. doi: 10.1007/s11764-008-0055-0. Epub 2008 Jun 3.
This study describes the information needs of adult cancer survivors, identifies sociodemographic, health, and healthcare-related factors associated with information needs, and examines the relationship between information needs and survivors' perceived mental and physical health.
One thousand forty survivors 2-5 years post-diagnosis who were identified via two cancer registries were included in the present analysis. Self-report questionnaires assessed six categories of information needs, sociodemographic, health, and healthcare-related variables, and perceived mental and physical health.
Information needs were prevalent and varied; most survivors need more information about tests and treatments, health promotion, side effects and symptoms, and interpersonal and emotional issues. Multivariate analyses suggested that survivors who were younger, who reported non-White race/ethnicity, who reported less than excellent quality of follow-up cancer care, and who had more comorbid health conditions had more information needs. After adjustment for sociodemographic and health-related variables, more information needs were associated with worse perceived mental and physical health.
Most cancer survivors needed more information about maintaining good health outcomes during survivorship. Health communication interventions, such as Survivorship Care Plans, have excellent potential to address survivors' information needs while improving quality of follow-up cancer care and health-related quality of life.
本研究描述了成年癌症幸存者的信息需求，确定了与信息需求相关的社会人口学、健康及医疗保健相关因素，并考察了信息需求与幸存者感知到的身心健康之间的关系。
通过两个癌症登记处确定了1040名确诊后2至5年的幸存者纳入本分析。自我报告问卷评估了六类信息需求、社会人口学、健康及医疗保健相关变量，以及感知到的身心健康状况。
信息需求普遍存在且各不相同；大多数幸存者需要更多关于检查与治疗、健康促进、副作用与症状以及人际和情感问题的信息。多变量分析表明，年龄较小、报告非白人种族/族裔、报告后续癌症护理质量低于优质水平以及有更多合并健康状况的幸存者有更多信息需求。在对社会人口学和健康相关变量进行调整后，更多的信息需求与更差的感知身心健康状况相关。
大多数癌症幸存者需要更多关于在康复期保持良好健康结果的信息。诸如康复护理计划等健康沟通干预措施在满足幸存者信息需求的同时，在改善后续癌症护理质量和与健康相关的生活质量方面具有巨大潜力。
