Blaauwbroek Ria, Zwart Nynke, Bouma Martijn, Meyboom-de Jong Betty, Kamps Willem A, Postma Aleida
Department of Paediatrics, Division of Paediatric Oncology, University Medical Centre Groningen, University of Groningen, Hanzeplein 1, P.O. Box 30 001, 9700 RB, Groningen, The Netherlands.
J Cancer Surviv. 2007 Dec;1(4):292-7. doi: 10.1007/s11764-007-0032-z. Epub 2007 Sep 27.
Long-term follow-up of childhood cancer survivors is mainly organised by paediatric oncologists and until now general practitioners (GPs) are rarely involved. To ensure appropriate follow-up for all survivors into adulthood, a combined effort of paediatric oncologists and general practitioners might be the solution. We investigated the willingness of GPs, who had followed a postgraduate course on late effects of cancer treatment, to participate in a shared care model for follow-up of adult childhood cancer survivors as well as what their requirements would be in case of participation.
From the Northern Netherlands, 358 GPs participated in a postgraduate course on late effects in paediatric cancer survivors. After the course, they were asked to complete a 10-item questionnaire on motivation to participate in the regular follow-up of adult childhood cancer survivors as well as their conditions to participate.
The response rate was 65%. Of the responders, 97% were willing to participate in a shared care model for follow-up and 64% felt that it was their responsibility to be in charge of childhood cancer survivors. The main requirements for participation were the availability of guidelines (64%), sufficient information about the patient's medical history (37%), and short communication lines (45%). The main barriers to participate were workload (16%), lack of knowledge (15%), and lack of communication (13%).
A significant number of GPs are ready to participate in the long-term follow-up of adult childhood cancer survivors if adequate guidelines and medical information is provided and communication lines are clear.
儿童癌症幸存者的长期随访主要由儿科肿瘤学家组织，到目前为止，全科医生（GP）很少参与其中。为确保所有幸存者成年后都能得到适当的随访，儿科肿瘤学家和全科医生共同努力可能是解决办法。我们调查了参加过癌症治疗远期效应研究生课程的全科医生参与成年期儿童癌症幸存者共享照护随访模式的意愿，以及他们参与的话有哪些要求。
来自荷兰北部的358名全科医生参加了关于儿科癌症幸存者远期效应的研究生课程。课程结束后，他们被要求填写一份包含10个条目的问卷，内容涉及参与成年期儿童癌症幸存者定期随访的动机以及参与条件。
回复率为65%。在回复者中，97%愿意参与共享照护随访模式，64%认为负责儿童癌症幸存者是他们的职责。参与的主要要求是有指南（64%）、有关于患者病史的充分信息（37%）以及沟通渠道畅通（45%）。参与的主要障碍是工作量（16%）、知识不足（15%）和缺乏沟通（13%）。
如果提供充分的指南和医疗信息且沟通渠道畅通，相当数量的全科医生愿意参与成年期儿童癌症幸存者的长期随访。
