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黎巴嫩癌症患者:沟通与告知真相的偏好

Lebanese cancer patients: communication and truth telling preferences.

作者信息

Doumit Myrna Abi Abdallah, Abu-Saad Huda Huijer

机构信息

School of Nursing, American University of Beirut, Beirut, Lebanon.

出版信息

Contemp Nurse. 2008 Apr;28(1-2):74-82. doi: 10.5172/conu.673.28.1-2.74.

Abstract

The purpose of this study was to describe and interpret the phenomenon of communication as lived by Lebanese cancer patients. Phenomenology based on the Utrecht School was chosen as an interpretive descriptive methodology to guide the processes of data collection, analysis and synthesis. In-depth semi structured interviews were carried out with a purposeful sample of ten cancer patients. Results of this qualitative study emphasise the needs of Lebanese cancer patients for a clear and truthful communication with healthcare professionals, and family members. Informants highlighted the influence of words used during communication on their outlook and morale. They also stressed the need to move from the paternalistic approach in care provision to patient-centered care that promotes patient autonomy. Informants clearly accentuated their rights to be told the truth about their condition.

摘要

本研究的目的是描述和阐释黎巴嫩癌症患者的交流现象。基于乌得勒支学派的现象学被选为一种解释性描述方法,以指导数据收集、分析和综合过程。对十名癌症患者进行了有目的抽样的深入半结构化访谈。这项定性研究的结果强调了黎巴嫩癌症患者与医护人员及家庭成员进行清晰、真实交流的需求。受访者强调了交流中所用言语对其人生观和士气的影响。他们还强调,在提供护理时需要从家长式做法转向以患者为中心的护理,以促进患者自主权。受访者明确强调了他们有权了解自身病情的真相。

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