Doumit Myrna A A, Khoury May Naifeh
a Alice Ramez Chagoury School of Nursing , Lebanese American University , Byblos , Lebanon.
b School of Nursing , American University of Beirut , Beirut , Lebanon.
J Psychosoc Oncol. 2017 May-Jun;35(3):346-361. doi: 10.1080/07347332.2017.1283654. Epub 2017 Jan 18.
Families with a child with cancer face significant emotional and psychosocial stressors. The frequency of childhood cancer is increasing in Lebanon with more than 282 children diagnosed each year. This condition is reported to evoke a range of challenging emotions for parents, yet no studies have been conducted on the facilitating and hindering factors that affect Lebanese parents coping with a child with cancer.
The purpose of the study was to gain an in-depth understanding of factors facilitating and hindering coping methods of Lebanese parents with a child with cancer.
The study followed purposeful sampling and saturation principles in which 12 parents (mother or father) of a child were interviewed. Data were analyzed following the Utrecht School of phenomenology.
Helpful and harmful experiences emerged through the coding process. The enabling factors were social/family support; talking about it; strong religious beliefs; and the communication style of health workers. On the other hand, the deterring factors were the waiting time and the hospital stay; changes in the couple's relationship; and sibling rivalry.
These results could be used as the basis for additional research aimed at developing a structured approach to care that endorses the coping processes of Lebanese parents with a child with cancer.
Nursing and medical staff need to be conscious of parents' coping strategies and their impact on family dynamics and the relationship between the family and the health care team.
家中有患癌儿童的家庭面临着巨大的情感和心理社会压力源。黎巴嫩儿童癌症的发病率正在上升,每年有超过282名儿童被确诊。据报道,这种情况会给父母带来一系列具有挑战性的情绪,但尚未有关于影响黎巴嫩父母应对患癌子女的促进因素和阻碍因素的研究。
本研究的目的是深入了解促进和阻碍黎巴嫩父母应对患癌子女的应对方法的因素。
本研究遵循目的抽样和饱和原则,采访了12名患癌儿童的父母(母亲或父亲)。采用乌得勒支现象学学派的方法对数据进行分析。
在编码过程中出现了有益和有害的经历。促进因素包括社会/家庭支持;谈论此事;坚定的宗教信仰;以及医护人员的沟通方式。另一方面,阻碍因素包括等待时间和住院时间;夫妻关系的变化;以及兄弟姐妹之间的竞争。
这些结果可作为进一步研究的基础,旨在制定一种结构化的护理方法,认可黎巴嫩父母应对患癌子女的过程。
护理和医务人员需要了解父母的应对策略及其对家庭动态以及家庭与医疗团队关系的影响。