Steele Rose, Derman Sarah, Cadell Susan, Davies Betty, Siden Hal, Straatman Lynn
School of Nursing, Faculty of Health, York University, Toronto, Canada.
Int J Palliat Nurs. 2008 Jun;14(6):287-95. doi: 10.12968/ijpn.2008.14.6.30024.
The results from a pilot study are reported in this article, part two of a two-part paper. The experiences of parents (six mothers and two fathers) are described as their families transitioned to the Canuck Place Children's Hospice (CPHC) in Canada. The perspectives of non-hospice health care professionals (n=4) involved in the child's care are explored. Data were gathered through audio-taped, semi-structured interviews. Initially, parents and health professionals were unaware that the hospice provided more than just end-of-life services. Parents began to consider hospice care when something changed in their lives that forced them to see things differently. This became the impetus for recognizing that CPCH might be a resource for their family. The prospect of respite care was usually the deciding factor in applying to the hospice. Parents reported benefits of hospice respite for themselves and the whole family. Recommendations for practice and future research are offered, including discussion about the feasibility of the study procedures.
本文报告了一项试点研究的结果,这是一篇分为两部分的论文的第二部分。文中描述了父母(六位母亲和两位父亲)在其家庭过渡到加拿大的卡纳克儿童临终关怀院(CPHC)时的经历。探讨了参与儿童护理的非临终关怀医疗保健专业人员(n = 4)的观点。数据通过录音的半结构化访谈收集。最初,父母和医疗专业人员并未意识到临终关怀院提供的不仅仅是临终服务。当他们生活中发生了某些变化,迫使他们以不同的方式看待事物时,父母开始考虑临终关怀护理。这成为认识到CPCH可能是其家庭资源的动力。喘息护理的前景通常是申请临终关怀院的决定性因素。父母报告了临终关怀喘息护理对他们自己和整个家庭的益处。文中还提供了对实践和未来研究的建议,包括对研究程序可行性的讨论。