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加拿大居家和社区服务的可及性与可接受性:痴呆症患者家庭照护者的观点

Availability and acceptability of Canadian home and community-based services: perspectives of family caregivers of persons with dementia.

作者信息

Forbes Dorothy A, Markle-Reid Maureen, Hawranik Pamela, Peacock Shelley, Kingston Dawn, Morgan Debra, Henderson Sandra, Leipert Beverley, Jansen S Lynn

机构信息

School of Nursing, The University of Western Ontario, London, Ontario, CA.

出版信息

Home Health Care Serv Q. 2008;27(2):75-99. doi: 10.1080/01621420802022548.

DOI:10.1080/01621420802022548
PMID:18928206
Abstract

Thirty-five percent of Canadians over the age of 85 have dementia, and up to 90% of their home care is provided by family and friends. The purpose of this study was to explore the use and satisfaction with home and community-based services for persons with dementia from the perspectives of family caregivers. The study was conducted using an interpretive, descriptive, qualitative approach. Six focus groups (N = 36) and three personal interviews were conducted with rural and urban caregivers in Ontario, Manitoba, and Saskatchewan, Canada. Using Lubrosky's (1994) thematic analysis, the overarching themes identified were availability and acceptability of services. The findings suggest a need for an integrated continuing care model that includes the person living with dementia and their family caregivers as partners in care, addresses all of the determinants of health, and embraces sensitivity, diversity, flexibility, and supportive services to enhance the availability and acceptability of Canadian home and community-based services.

摘要

85岁以上的加拿大人中有35%患有痴呆症,其中高达90%的居家护理由家人和朋友提供。本研究的目的是从家庭照顾者的角度探讨痴呆症患者对居家和社区服务的使用情况及满意度。该研究采用解释性、描述性的定性研究方法。对加拿大安大略省、曼尼托巴省和萨斯喀彻温省的农村和城市照顾者进行了六个焦点小组访谈(N = 36)和三次个人访谈。采用鲁布罗茨基(1994年)的主题分析法,确定的总体主题是服务的可获得性和可接受性。研究结果表明,需要一种综合的持续护理模式,该模式将痴呆症患者及其家庭照顾者视为护理伙伴,解决所有健康决定因素,并包含敏感性、多样性、灵活性和支持性服务,以提高加拿大家庭和社区服务的可获得性和可接受性。

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