Kirkpatrick Pinson Donna Marie, Ottens Allen J, Fisher Teresa A
National-Louis University, Chicago, Illinois, USA.
Qual Health Res. 2009 Feb;19(2):181-93. doi: 10.1177/1049732308329465. Epub 2008 Dec 17.
In this qualitative study, we explored the question of why some women with progressive forms of multiple sclerosis (MS) cope successfully in spite of disease progression. Ten women with progressive courses of MS, the more physically challenging forms of the disease, who self-reported as coping successfully with the disease, participated in the study. The study features an interview protocol using a psychotherapeutic model of change, precursors of change model, and incorporates a then-post design. The women's rich descriptions and explanations of precursors indicate the differences between the precursors used most frequently at time of diagnosis with MS and at the time of interview. The article provides a glimpse into the experiences these women have had with the continued change and unpredictability that the disease often engenders.
在这项定性研究中，我们探讨了为何一些患有进展型多发性硬化症（MS）的女性尽管疾病在进展，但仍能成功应对的问题。十名患有进展型MS（该疾病中对身体挑战更大的形式）且自我报告称成功应对疾病的女性参与了该研究。该研究采用了一种使用心理治疗改变模型、改变前体模型的访谈方案，并纳入了一个前后设计。这些女性对前体的丰富描述和解释表明了在MS诊断时和访谈时最常使用的前体之间的差异。本文让我们得以一窥这些女性在疾病常常带来的持续变化和不可预测性方面的经历。
