Oral Medicine Unit, Cork University Dental School and Hospital, Wilton, Cork, Ireland.
Oral Oncol. 2009 Aug;45(8):675-7. doi: 10.1016/j.oraloncology.2008.10.006. Epub 2008 Dec 17.
This study aimed to determine the type, accuracy and content of information available on the internet regarding head and neck cancer. The search engine Google was used to generate a list of the top 100 websites about head and neck cancer. The websites were evaluated using the DISCERN instrument and the JAMA benchmarks and whether the site displayed the Health on the Net seal was also recorded. The search yielded 1,650,000 sites on the Google website. Of the top 100 sites, a total of 33 sites were suitable for analysis due to duplicate links, non-functioning links and irrelevant website. 45% achieved all four JAMA benchmarks and 18% achieved only 1 benchmark. No website receiving the maximum mark on the overall score and four websites received the lowest overall score regarding the DISCERN instrument. The question with the poorest response score was 'Does it describe how the treatment choices affect overall quality of life?' 39% of the websites displayed the Health on the Net (HON) seal. A wide variety of types of information are available on the internet regarding head and neck cancer with variable accuracy levels based on both Journal of the American Medical Association (JAMA) benchmarks and DISCERN. The onus lies with the practitioner to guide the patient regarding scientific reliability of information and to direct the patient in filtering the information sourced. The inclusion of quality of life related information is currently lacking and should be addressed to ensure a more comprehensive understanding for patients of treatment options.
本研究旨在确定互联网上有关头颈部癌症的信息类型、准确性和内容。使用搜索引擎 Google 生成了有关头颈部癌症的前 100 个网站列表。使用 DISCERN 工具和 JAMA 基准评估网站，并记录网站是否显示了健康网络（Health on the Net，HON）印章。在 Google 网站上搜索到了 165 万个网站。在前 100 个网站中，由于重复链接、无法正常工作的链接和不相关的网站，共有 33 个网站适合进行分析。45%的网站达到了 JAMA 基准的全部四项，而 18%的网站仅达到了一项基准。没有一个网站在总体评分中获得最高分，有四个网站在 DISCERN 工具中获得了最低分。回答最差的问题是“它是否描述了治疗选择如何影响整体生活质量？”39%的网站显示了健康网络（Health on the Net，HON）印章。互联网上有各种各样的关于头颈部癌症的信息类型，其准确性水平基于 JAMA 基准和 DISCERN 各不相同。医生有责任指导患者了解信息的科学可靠性，并指导患者筛选所获取的信息。目前还缺乏与生活质量相关的信息，应加以解决，以确保患者更全面地了解治疗选择。
