Hjärthag Fredrik, Helldin Lars, Norlander Torsten
Department of Psychology, Karlstad University, Sweden.
Psychol Rep. 2008 Oct;103(2):323-35. doi: 10.2466/pr0.103.2.323-335.
Earlier studies have shown that close relatives are heavily burdened when a family member has schizophrenia. The current purpose was twofold: (1) to examine the psychometric properties for a test of the burden of family members, one used in Swedish clinical practice (the Care Burden Scale for Relatives), and (2) develop a shortened version with the same or better psychometric properties. 99 close relatives, 34 men and 65 women of the same number of patients who had been diagnosed with schizophrenia, schizoaffective disorder, or delusional disorder, completed the Care Burden Scale for Relatives and a visual analog scale measuring perceived global burden on which the total burden was assessed. Patients of the close relatives were assessed on clinical tests often used in psychiatric care to validate the external criteria, such as severity of symptoms and level of functioning. The resulting version, the Burden Inventory for Relatives of persons with psychotic disturbances, showed good psychometric properties which simplifies data collection from relatives of patients with psychotic disturbances. In this study, relatives of those patients not in remission evinced a significantly greater family burden.
早期研究表明,当家庭成员患有精神分裂症时,其近亲会承受沉重负担。当前的目的有两个:(1)检验一种用于瑞典临床实践的家庭成员负担测试(亲属护理负担量表)的心理测量特性,(2)开发一个具有相同或更好心理测量特性的简化版本。99名近亲,其中34名男性和65名女性,他们的亲属被诊断患有精神分裂症、分裂情感性障碍或妄想障碍,完成了亲属护理负担量表以及一个测量感知总体负担的视觉模拟量表,通过该量表评估总负担。近亲的患者接受了精神科护理中常用的临床测试,以验证外部标准,如症状严重程度和功能水平。最终形成的版本,即精神障碍患者亲属负担量表,显示出良好的心理测量特性,这简化了从精神障碍患者亲属那里收集数据的过程。在这项研究中,那些未缓解患者的亲属表现出明显更大的家庭负担。