Department of Psychology, Karlstad University, 651 88 Karlstad, Sweden.
Soc Psychiatry Psychiatr Epidemiol. 2012 Apr;47(4):581-7. doi: 10.1007/s00127-011-0358-8. Epub 2011 Feb 25.
In this study, the individuals with psychotic disorders' daily life function was investigated on six dimensions considering their relations to family burden. Functional ratings carried out by relatives and staff were also compared.
Totally 88 relatives, to as many individuals diagnosed with a psychotic disorder, participated in this study. Relatives were to rate their own perceived burden and their ill relatives' physical functioning, personal care skills, interpersonal relationships, social acceptability, activities, and work skills. The outpatient staff, in all 24 case managers also rated the patients' functional level on the same assessment tool as did the relatives.
Most dimensions of patients' everyday functioning were highly correlated to relatives' burden. The two functional dimensions "interpersonal relationships" and "activities" were best at classifying burden when rated by relatives. Also, comparing independent functional ratings by relatives and staff showed that despite great agreements on most dimensions, they differed significantly on "social acceptability" where relatives rated the function to be poorer and "activities" where relatives rated the function to be better.
Relatives, who perceive individuals with a psychotic disorder to be limited in their ability to interpersonal relationships and limited in their ability to activate in everyday life, are more likely to perceive a higher burden. Even though staff and relatives mainly agree on the patients' functional ability, they often differ in ratings regarding patients' social acceptability and ability to activate in everyday life. This should be worth considering in clinical practice as well as in future research.
在这项研究中，考虑到与家庭负担的关系，从六个维度调查了患有精神病障碍的个体的日常生活功能。还比较了由亲属和工作人员进行的功能评定。
共有 88 名亲属参加了这项针对 88 名被诊断患有精神障碍的个体的研究。亲属要对自己的感知负担和患病亲属的身体功能、个人护理技能、人际关系、社会可接受性、活动和工作技能进行评分。24 名门诊工作人员也对患者进行了同样的评估工具的功能水平评估。
患者日常生活功能的大多数维度都与亲属的负担高度相关。当亲属进行评定时，“人际关系”和“活动”这两个功能维度最能对负担进行分类。此外，比较亲属和工作人员独立进行的功能评定显示，尽管在大多数维度上存在很大的一致性，但在“社会可接受性”方面存在显著差异，亲属认为功能较差，而在“活动”方面则存在显著差异，亲属认为功能较好。
认为患有精神病障碍的个体在人际关系方面能力有限且日常生活活动能力有限的亲属更有可能感到负担较重。尽管工作人员和亲属主要对患者的功能能力达成一致，但他们对患者的社会可接受性和日常生活活动能力的评分往往存在差异。在临床实践和未来的研究中都应该考虑到这一点。
