Wikblad K F
Centre for Caring Sciences, University Hospital, Uppsala, Sweden.
J Adv Nurs. 1991 Jul;16(7):837-44. doi: 10.1111/j.1365-2648.1991.tb01765.x.
Educating and supporting patients in managing their daily life with diabetes mellitus are important goals of diabetes care today. These goals demand not only good medical knowledge but also good communication skills in the members of the diabetes care team and in the patients. Continuity and accessibility are naturally factors influencing the communication between the patients and the care team. This study, based on 55 interviews with well-experienced insulin-dependent diabetic patients, shows further that the contacts between the diabetes care system and the patient are often only superficial and in practice mainly related to the patient's metabolic control. Patients with good or acceptable metabolic control experience positive feed-back from the care team, while those with unsatisfactory or unacceptable metabolic control do not receive positive response and support to the same degree. The patients want to be permitted to be responsible for themselves and need support from the care team in order to accomplish this. From the patient's perspective, the diabetes education consists of an overwhelming amount of new information which often is presented on only one occasion. The patients want the education to be on an acceptable but minimum level and to be a continuous process that is applicable in practice.
教育并支持糖尿病患者管理其日常生活，是当今糖尿病护理的重要目标。这些目标不仅要求糖尿病护理团队成员具备良好的医学知识，还要求他们具备良好的沟通技巧，患者亦是如此。连续性和可及性自然是影响患者与护理团队之间沟通的因素。这项基于对55名经验丰富的胰岛素依赖型糖尿病患者进行访谈的研究进一步表明，糖尿病护理系统与患者之间的接触往往只是表面的，在实际中主要与患者的代谢控制有关。代谢控制良好或可接受的患者会从护理团队获得积极反馈，而代谢控制不令人满意或不可接受的患者则得不到同等程度的积极回应和支持。患者希望能够为自己负责，并且需要护理团队的支持来实现这一点。从患者的角度来看，糖尿病教育包含大量新信息，而这些信息往往只在一次讲解中呈现。患者希望教育内容处于可接受的最低水平，并且是一个适用于实际的持续过程。
