Moore Jean Burley, Kaffenberger Carol, Goldberg Patricia, Hudspeth Robin
School of Nursing, George Mason University, Fairfax, Virginia, 22030, USA.
J Pediatr Oncol Nurs. 2009 Mar-Apr;26(2):86-99. doi: 10.1177/1043454208328765. Epub 2009 Feb 6.
The purpose of this interdisciplinary descriptive study was to examine the perceptions of nurses, school personnel, and parents about school reentry for children with cancer and to determine whether activities and services performed supported school reentry. The study also investigated parents' perception of the impact of cancer on their child's academic performance, cognitive ability, and school attendance. Results of the study showed that few activities and services were performed to facilitate children's school reentry by either nurses or school personnel. Parents reported no significant differences in their children's cognitive ability or academic performance. School attendance was significantly lower after diagnosis and therapy. Conclusions were that communication among nurses, school personnel, and parents was a major barrier to providing effective services to students and their parents. Nurses were unsure of how to help parents navigate the school bureaucracy, school personnel felt they needed more information, and parents felt that their children were not receiving all the school reentry services needed. Individuals in this study recommended that a liaison position be created to coordinate services.
这项跨学科描述性研究的目的是调查护士、学校工作人员和家长对癌症患儿重返校园的看法，并确定所开展的活动和服务是否有助于患儿重返校园。该研究还调查了家长对癌症对其孩子学业成绩、认知能力和上学出勤率影响的看法。研究结果表明，护士和学校工作人员几乎没有开展任何有助于患儿重返校园的活动和服务。家长报告称，他们孩子的认知能力或学业成绩没有显著差异。诊断和治疗后，上学出勤率显著降低。研究得出的结论是，护士、学校工作人员和家长之间的沟通是为学生及其家长提供有效服务的主要障碍。护士不确定如何帮助家长应对学校的官僚程序，学校工作人员觉得他们需要更多信息，而家长则觉得他们的孩子没有得到所需的所有重返校园服务。参与本研究的人员建议设立一个联络职位来协调各项服务。
