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重返校园:新冠疫情期间血液肿瘤疾病患儿家长的担忧

Back to School: Parental Concerns of Children with Hematological and Oncological Conditions During the COVID-19 Pandemic.

作者信息

DiCola Katie, Antosy Alexandra, Steinberg Dara M

机构信息

Columbia University Medical Center, US.

出版信息

Contin Educ. 2023 Oct 2;4(1):126-138. doi: 10.5334/cie.92. eCollection 2023.

Abstract

The Coronavirus Disease 2019 (COVID-19) pandemic has significantly affected the educational system. Historically, children with hematological and oncological conditions have experienced academic challenges. A retrospective chart review was conducted. Charts reviewed included children with oncology or hematology conditions, whose parents expressed educational concerns and were referred to an educational liaison in the Pediatric Hematology, Oncology, and Stem Cell Transplantation Division. The parental concerns for 102 children ( age = 10.03 ± 4.7; 59.8% male; 43.1% Latinx/Hispanic) during the first half of the 2021 to 2022 academic year were extracted. Overall, all parents reported at least one concern with the average reporting 2.24 ± 1.34 (range of 1-6 concerns). The most common general concerns regarded: Individualized Education Programs (IEP) or special education evaluations; 504 accommodations; home instruction; school enrollment. Almost half of the parents had additional concerns they specifically attributed to COVID-19. Children with hematological and oncological conditions were experiencing various needs at this time, which likely have continued implications. It is important for educators, school psychologists, and health care providers to remain cognizant of the educational needs of medically vulnerable populations. Children with hematological and oncological conditions benefit from regular evaluation of their needs, as well as proactive forms of intervention.

摘要

2019年冠状病毒病(COVID-19)大流行对教育系统产生了重大影响。从历史上看,患有血液学和肿瘤学疾病的儿童一直面临学业挑战。我们进行了一项回顾性图表审查。审查的图表包括患有肿瘤学或血液学疾病的儿童,其父母表达了教育方面的担忧,并被转介到儿科血液学、肿瘤学和干细胞移植科的教育联络人处。我们提取了2021至2022学年上半年102名儿童(年龄 = 10.03 ± 4.7;59.8%为男性;43.1%为拉丁裔/西班牙裔)家长的担忧。总体而言,所有家长都报告了至少一项担忧,平均报告2.24 ± 1.34项担忧(范围为1至6项担忧)。最常见的一般担忧涉及:个性化教育计划(IEP)或特殊教育评估;504条款规定的便利措施;家庭教学;入学。几乎一半的家长还有他们特别归因于COVID-19的其他担忧。患有血液学和肿瘤学疾病的儿童此时正面临各种需求,这可能会产生持续的影响。教育工作者、学校心理学家和医疗保健提供者必须认识到医疗脆弱人群的教育需求。患有血液学和肿瘤学疾病的儿童受益于对其需求的定期评估以及积极的干预形式。

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