Nam Sara Liane, Fielding Katherine, Avalos Ava, Gaolathe Tendani, Dickinson Diana, Geissler Paul Wenzel
Infectious Diseases Epidemiology Unit, London School of Hygiene and Tropical Medicine, London, UK.
AIDS Care. 2009 Mar;21(3):389-95. doi: 10.1080/09540120802270276.
Little is published about the disclosure of parents' own HIV status to their children in Africa. Research shows that keeping family secrets from children, including those related to a parent's HIV status, can be detrimental to their psychological well-being and to the structure of the family. Further, children with HIV-positive parents have been shown to be more vulnerable to poorer reproductive health outcomes. This qualitative study in Botswana conducted in-depth interviews among 21 HIV-positive parents on antiretroviral therapy. The data revealed that parents found discussing the issue of HIV with children difficult, including disclosing their own HIV status to them. Reasons for disclosing included: children being HIV positive, the rest of the family knowing, or the parent becoming very sick. Reasons for not disclosing included: believing the child to be too young, not knowing how to address the issue of HIV, that it would be "too painful" for the child/ren. Concern that other people might find out about their status or fear of children experiencing stigmatising behaviour. Interviews elucidated the difficulty that parents have in discussing their own HIV status and more general sexual health issues with their children. Parents and other guardians require support in managing age-appropriate disclosure to their children. This may further enable access to forums that can help children cope with their fears about the future and develop life skills in preparation for dealing with relationships of a sexual nature and sexual health as children move into adulthood. In developing such support mechanisms, changing family roles in Botswana need to be taken into consideration and the role of other family members in the upbringing of children in Tswana society need to be recognised and utilised.
在非洲,关于父母向子女披露自身艾滋病毒感染状况的相关报道很少。研究表明,对孩子隐瞒家庭秘密,包括与父母艾滋病毒感染状况有关的秘密,可能会对他们的心理健康和家庭结构造成损害。此外,父母一方为艾滋病毒阳性的孩子更容易出现较差的生殖健康结果。这项在博茨瓦纳进行的定性研究,对21名正在接受抗逆转录病毒治疗的艾滋病毒阳性父母进行了深入访谈。数据显示,父母发现与孩子讨论艾滋病毒问题很困难,包括向他们披露自己的艾滋病毒感染状况。披露的原因包括:孩子艾滋病毒检测呈阳性、家庭其他成员知晓,或者父母病得很重。不披露的原因包括:认为孩子太小、不知道如何谈论艾滋病毒问题、担心这对孩子来说“太痛苦”。担心其他人可能会发现他们的状况,或者害怕孩子遭受污名化行为。访谈阐明了父母在与孩子讨论自己的艾滋病毒感染状况以及更普遍的性健康问题时所面临的困难。父母和其他监护人在向孩子进行适合其年龄的信息披露时需要得到支持。这可能会进一步促使他们参与相关论坛,帮助孩子应对对未来的恐惧,并培养生活技能,为孩子成年后处理性方面的关系和性健康做好准备。在建立这种支持机制时,需要考虑到博茨瓦纳家庭角色的变化,并且要认识到并利用茨瓦纳社会中其他家庭成员在孩子成长过程中的作用。