Lightfoot Marguerita, Campbell Renisha, Khumalo-Sakutukwa Gertrude, Chingono Alfred, Hughes Shana, Taylor Kelly
Division of Prevention Science, University of California, San Francisco, San Francisco, USA.
College of Health Sciences, University of Zimbabwe, Harare, Zimbabwe.
Vulnerable Child Youth Stud. 2023;18(2):231-241. doi: 10.1080/17450128.2022.2131948. Epub 2022 Nov 1.
Disclosure to children has been identified as one of the main challenges for parents living with HIV (PLH). The aim of this study was to qualitatively explore motivators, barriers, and the process of parental disclosure in a Zimbabwean community with high HIV prevalence. A total of 28 PLH participated in three focus groups comprising PLH who had disclosed their HIV status to their children (n = 11), PLH who had not disclosed to their children (n = 7), and the third group contained PLH who both had and had not disclosed their status (n = 10). Full, partial and indirect disclosure approaches were used by parents. Barriers to disclosing included the children being "too young" and lacking understanding of HIV as well as inability to maintain confidentiality around parents' status, 2) causing the child to worry, 3) being embarrassed, and 4) fearing that disclosure would prompt a child to treat a parent with disrespect. Motivators included 1) support of various kinds from their children, 2) educating their children around HIV risk, and 3) facilitating discussions about parental illness and death. Our findings suggest that understanding the barriers to disclosure is likely insufficient for supporting and promoting parental disclosure. The motivation for disclosure, support for the disclosure process, and culturally relevant interventions are needed to promote and support parental disclosure.
向儿童透露病情已被确定为感染艾滋病毒的父母(PLH)面临的主要挑战之一。本研究的目的是定性探索津巴布韦一个艾滋病毒高流行社区中父母透露病情的动机、障碍和过程。共有28名感染艾滋病毒的父母参加了三个焦点小组,其中一组是已向子女透露自己艾滋病毒感染状况的父母(n = 11),另一组是未向子女透露的父母(n = 7),第三组父母既有向子女透露病情的,也有未透露的(n = 10)。父母采用了完全、部分和间接的透露方式。透露病情的障碍包括孩子“太小”、对艾滋病毒缺乏了解以及无法对父母的病情保密,2)使孩子担心,3)感到尴尬,4)担心透露病情会促使孩子不尊重父母。动机包括1)得到孩子的各种支持,2)对孩子进行艾滋病毒风险教育,3)便于讨论父母的疾病和死亡。我们的研究结果表明,仅了解透露病情的障碍可能不足以支持和促进父母透露病情。需要透露病情的动机、对透露过程的支持以及与文化相关的干预措施来促进和支持父母透露病情。