Shaha Maya, Bauer-Wu Susan
Johns Hopkins University School of Nursing, Baltimore, Maryland, USA.
Cancer Nurs. 2009 May-Jun;32(3):246-55. doi: 10.1097/NCC.0b013e31819b5b2e.
Young women with breast cancer face a more aggressive disease and lower survival rate compared with those who are older, thereby confronting the potential finitude of life or transitoriness at a time when they are establishing their careers, developing partnerships, and building families. Little is known about the perspectives of young women with breast cancer in how they consider issues of their own mortality. Patients with stage I to III breast cancer aged 39 years and younger who were diagnosed within the last year (N = 16) were included in this qualitative study, which was a secondary analysis of texts written during an expressive writing intervention. Thematic analysis was done by 2 researchers, who reached consensus in coding and theme identification. Nine of the 16 participants (56%) wrote about their mortality (transitoriness). Three themes (being remembered, landscape of emotions and perspectives, and omnipresence of life's finitude) and 10 subthemes were identified from the rich narrative texts. Despite early-stage diagnosis and the beginning phases of adulthood, young women with breast cancer contemplate their mortality and its potential repercussions on their loved ones and their careers. Oncology professionals need to be sensitive to these concerns and provide opportunities for discussion and/or referrals for their young patients as they grapple with such potentially overwhelming issues.
与老年女性相比,年轻乳腺癌患者面临的疾病更具侵袭性,生存率更低,因此在她们正处于事业发展、建立人际关系和组建家庭的时期,面临着生命可能有限或短暂的问题。关于年轻乳腺癌患者如何看待自身死亡问题的观点,人们知之甚少。这项定性研究纳入了去年内确诊的年龄在39岁及以下的I至III期乳腺癌患者(N = 16),该研究是对一项表达性写作干预期间所写文本的二次分析。由两名研究人员进行主题分析,他们在编码和主题识别方面达成了共识。16名参与者中有9名(56%)写到了自己的死亡(短暂性)。从丰富的叙述性文本中识别出了三个主题(被铭记、情感与观点的图景、生命有限性的无所不在)和10个子主题。尽管处于早期诊断和成年初期阶段,年轻乳腺癌患者仍在思考自己的死亡及其对亲人与事业的潜在影响。肿瘤学专业人员需要对这些担忧保持敏感,并在年轻患者努力应对这些可能难以承受的问题时,为他们提供讨论和/或转诊的机会。