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神经发育障碍患儿照料者的健康状况及社会心理功能

The health and psychosocial functioning of caregivers of children with neurodevelopmental disorders.

作者信息

Lach Lucyna M, Kohen Dafna E, Garner Rochelle E, Brehaut Jamie C, Miller Anton R, Klassen Anne F, Rosenbaum Peter L

机构信息

School of Social Work, McGill University, Montreal, Quebec, Canada.

出版信息

Disabil Rehabil. 2009;31(8):607-18. doi: 10.1080/09638280802242163.

Abstract

PURPOSE

Children with neurodevelopmental disorders (Neuro) pose complex parenting challenges, particularly if the condition co-occurs with behaviour problems. Such challenges are likely to impact caregiver health and well-being. This study explores the extent to which caregivers of children with both Neuro and behaviour problems differ in their physical and psychosocial outcomes from caregivers of children with either condition or neither condition.

METHOD

The first wave of data collected in the National Longitudinal Survey of Children and Youth in Canada (1994) was used to identify four groups of caregivers of 4- to 11-year-old children: caregivers of children with a Neuro disorder and externalizing behaviour problems (Both; n = 414), caregivers of children with a Neuro disorder only (Neuro Only; n = 750), caregivers of children with an externalizing behaviour problem only (Ext Only; n = 1067), and caregivers of children with neither health condition (Neither; n = 7236).

RESULTS

Caregivers in the Both group were least likely to report excellent or very good health, and more frequently reported chronic conditions such as asthma, arthritis, back problems, migraine headaches, and limitations in activities as compared to the Neither group. This group also exhibited higher depression scores, experienced more problematic family functioning and reported lower social support than the Neither group. Scores for caregivers in the Ext Only and Neuro Only groups tended to lie between the Both and Neither group scores and often did not differ from one another.

CONCLUSIONS

Caregivers of children with both neurodevelopmental disorders and behaviour problems exhibited a greater number of health and psychosocial problems. While addressing children's behaviour problems, health care professionals should also consider caregiver physical and psychosocial health, as this may also have an impact on children's well-being.

摘要

目的

患有神经发育障碍(Neuro)的儿童给养育带来了复杂的挑战,尤其是当这种情况与行为问题同时出现时。此类挑战可能会影响照料者的健康和幸福。本研究探讨了患有神经发育障碍和行为问题的儿童的照料者在身体和心理社会方面的结果与患有其中一种情况或两种情况都没有的儿童的照料者相比有多大差异。

方法

利用加拿大全国儿童和青少年纵向调查(1994年)收集的第一波数据,确定了四组4至11岁儿童的照料者:患有神经发育障碍和外化行为问题的儿童的照料者(两者兼具组;n = 414)、仅患有神经发育障碍的儿童的照料者(仅Neuro组;n = 750)、仅患有外化行为问题的儿童的照料者(仅Ext组;n = 1067)以及两种健康状况都没有的儿童的照料者(两者都无组;n = 7236)。

结果

与两者都无组相比,两者兼具组的照料者最不可能报告健康状况极佳或非常好,并且更频繁地报告患有慢性疾病,如哮喘、关节炎、背部问题、偏头痛以及活动受限。与两者都无组相比,该组还表现出更高的抑郁得分,经历了更多有问题的家庭功能,并报告社会支持较低。仅Ext组和仅Neuro组照料者的得分往往介于两者兼具组和两者都无组的得分之间,且通常彼此没有差异。

结论

患有神经发育障碍和行为问题的儿童的照料者表现出更多的健康和心理社会问题。在解决儿童行为问题时,医疗保健专业人员还应考虑照料者的身体和心理社会健康,因为这也可能会影响儿童的幸福。

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