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改变方向,拓展视野:为发展障碍儿童的父母提供更具包容性的医疗保健。

Changing Directions and Expanding Horizons: Moving towards More Inclusive Healthcare for Parents of Children with Developmental Disabilities.

机构信息

School of Rehabilitation Science, McMaster University, Hamilton, ON L8S 1C7, Canada.

CanChild Centre for Childhood Disability Research, McMaster University, Hamilton, ON L8S 1C7, Canada.

出版信息

Int J Environ Res Public Health. 2023 Oct 27;20(21):6983. doi: 10.3390/ijerph20216983.

Abstract

Family-centred service (FCS) acknowledges the importance of family engagement in therapeutic processes and focuses on the needs of all family members. This way of thinking and practicing is becoming increasingly recognized as an optimal care delivery model for families of children with developmental disabilities (DDs). However, in most places, disability services are oftentimes 'child-centric', wherein family members are seen only as partners in therapy or care delivery, while their own needs are not addressed. This arises from the lack of awareness of complex and highly individual family needs by professionals with whom they interact, but also from a significant lack of service infrastructure oriented towards parent-specific needs in existing service delivery models. This concept paper highlights the known challenges associated with parenting a child with a DD and discusses the intersectionality of factors impacting parental health and well-being, with a goal of promoting more equitable, holistic, and inclusive healthcare for all family members of children with DDs.

摘要

家庭为中心的服务(FCS)承认家庭参与治疗过程的重要性,并关注所有家庭成员的需求。这种思维和实践方式正逐渐被认为是为发育障碍(DD)儿童的家庭提供最佳护理模式。然而,在大多数地方,残疾服务往往是“以儿童为中心”的,在这种模式中,家庭成员仅被视为治疗或护理提供的伙伴,而他们自己的需求则没有得到满足。这是由于与他们互动的专业人员对复杂且高度个体化的家庭需求缺乏认识,也由于现有服务提供模式中缺乏针对特定家长需求的服务基础设施。本概念论文强调了与养育患有 DD 的儿童相关的已知挑战,并讨论了影响父母健康和福祉的因素的交叉性,目的是为所有患有 DD 的儿童的家庭成员提供更公平、更全面和更具包容性的医疗保健。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0236/10649410/06b10144d753/ijerph-20-06983-g001.jpg

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