心理健康研究中的伦理问题：社区参与的案例。
Ethical issues in mental health research: the case for community engagement.
机构信息
Gnaegi Center for Healthcare Ethics, Salus 5th floor, Saint Louis University, 3545 Lafayette Avenue, St Louis, MO 63104, USA.
出版信息
Curr Opin Psychiatry. 2011 May;24(3):208-14. doi: 10.1097/YCO.0b013e3283459422.
Abstract
PURPOSE OF REVIEW
To describe community-engaged research (CEnR) and how it may improve the quality of a research study while addressing ethical concerns that communities may have with mental health and substance abuse research. This article includes a review of the literature as well as recommendations from an expert panel convened with funding from the US National Institute of Mental Health.
RECENT FINDINGS
CEnR represents a broad spectrum of practices, including representation on institutional ethics committees, attitude research with individuals from the study population, engaging community advisory boards, forming research partnerships with community organizations, and including community members as co-investigators.
SUMMARY
CEnR poses some challenges; for example, it requires funding and training for researchers and community members. However, it offers many benefits to researchers and communities, and some form of CEnR is appropriate and feasible in nearly every study involving human participants.
摘要
目的综述：描述社区参与式研究（CEnR），以及它如何在解决社区对心理健康和药物滥用研究可能存在的伦理问题的同时，提高研究质量。本文包括对文献的综述以及由美国国家心理健康研究所资助召集的专家小组的建议。
最近发现：CEnR 代表了广泛的实践，包括在机构伦理委员会中的代表、对研究人群中个体的态度研究、让社区咨询委员会参与、与社区组织建立研究伙伴关系以及让社区成员作为共同研究者。
总结：CEnR 带来了一些挑战；例如，它需要研究人员和社区成员的资金和培训。然而，它为研究人员和社区带来了许多好处，而且几乎在每一项涉及人类参与者的研究中，都需要某种形式的 CEnR。
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本文引用的文献
1
The Belmont Report. Ethical principles and guidelines for the protection of human subjects of research.《贝尔蒙报告》。保护人类研究受试者的伦理原则与准则。
J Am Coll Dent. 2014 Summer;81(3):4-13.
2
Attitudes of patients with schizophrenia to psychiatric research.精神分裂症患者对精神科研究的态度。
Int J Psychiatry Clin Pract. 2008;12(3):165-70. doi: 10.1080/13651500701636502.
3
Increasing research literacy in minority communities: CARES fellows training program.提高少数族裔社区的研究素养：CARES研究员培训计划。
J Empir Res Hum Res Ethics. 2010 Dec;5(4):33-41. doi: 10.1525/jer.2010.5.4.33.
4
Understanding the African American Research Experience (KAARE): Implications for HIV Prevention.了解非裔美国人的研究经历（KAARE）：对艾滋病预防的启示
Soc Work Ment Health. 2007 May 1;5(3 & 4):295-312. doi: 10.1300/J200v05n03_03.
5
6
Nine key functions for a human subjects protection program for community-engaged research: points to consider.社区参与研究的人体受试者保护计划的九项关键功能：需考虑的要点。
J Empir Res Hum Res Ethics. 2010 Mar;5(1):33-47. doi: 10.1525/jer.2010.5.1.33.
7
The challenges of collaboration for academic and community partners in a research partnership: points to consider.学术与社区合作伙伴在研究合作中的挑战：需考虑的要点。
J Empir Res Hum Res Ethics. 2010 Mar;5(1):19-31. doi: 10.1525/jer.2010.5.1.19.
8
Barriers and opportunities for recruitment for nonintervention studies on HIV risk: perspectives of street drug users.招募非干预性 HIV 风险研究的障碍和机会：街头吸毒者的观点。
Subst Use Misuse. 2009;44(11):1642-59. doi: 10.1080/10826080802543671.
9
The attitudes of females in drug court toward additional safeguards in HIV prevention research.药物法庭中女性对 HIV 预防研究中增加保障措施的态度。
Prev Sci. 2009 Dec;10(4):345-52. doi: 10.1007/s11121-009-0136-y.
10
Genetic testing of stored biological samples: views of 570 U.S. workers.存储生物样本的基因检测：570名美国工作人员的观点
Genet Test Mol Biomarkers. 2009 Jun;13(3):331-7. doi: 10.1089/gtmb.2008.0117.
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