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儿科住院医师和研究员对姑息治疗教育的看法。

Pediatric residents' and fellows' perspectives on palliative care education.

作者信息

Michelson Kelly Nicole, Ryan Anne Daley, Jovanovic Borko, Frader Joel

机构信息

Division of Pediatric Critical Care Medicine, Children's Memorial Hospital, Chicago, Illinois 60614-3394, USA.

出版信息

J Palliat Med. 2009 May;12(5):451-7. doi: 10.1089/jpm.2008.0263.

DOI:10.1089/jpm.2008.0263
PMID:19416042
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC2802103/
Abstract

BACKGROUND

The American Academy of Pediatrics recommends that pediatricians become knowledgeable in and comfortable with providing palliative care.

OBJECTIVE

The study goals included: determining the extent of training, knowledge, experience, comfort and competence in palliative care communication and symptom management of pediatric residents and fellows; obtaining residents' and fellows' views on key palliative care concepts; identifying topics and methods for palliative care education; and identifying differences in responses between residents and fellows.

DESIGN/METHODS: In academic year 2006-2007 pediatrics residents and fellows completed a survey on: training, experience, knowledge, competence, and comfort in delivering palliative care; palliative care practices; and suggestions for delivering palliative care education.

RESULTS

Fifty-two (60%) and 44 (62%) residents and fellows respectively completed the survey. Residents and fellows described none to moderate levels of training, experience, knowledge, competence and comfort in palliative care. Most respondents said they would benefit from more formal palliative care training. Respondents identified discussing prognosis, delivering bad news, and pain control as the three most important areas of needed education. Learning about supporting families spiritually and emotional support for physicians were among the least important educational areas identified. Respondents recommended delivering education via observation, bedside teaching, and participation in multidisciplinary groups.

CONCLUSIONS

Efforts to improve education in pediatric palliative care are needed. A palliative care team could facilitate palliative care education through engaging trainees in "real-life" interactions. The role of physicians in providing spiritual support and the need for educating physicians in obtaining emotional support for themselves merit further investigation.

摘要

背景

美国儿科学会建议儿科医生熟悉并乐于提供姑息治疗。

目的

该研究的目标包括:确定儿科住院医师和研究员在姑息治疗沟通及症状管理方面的培训程度、知识水平、经验、舒适度和能力;了解住院医师和研究员对关键姑息治疗概念的看法;确定姑息治疗教育的主题和方法;以及找出住院医师和研究员在回答上的差异。

设计/方法:在2006 - 2007学年,儿科住院医师和研究员完成了一项关于以下方面的调查:提供姑息治疗的培训、经验、知识、能力和舒适度;姑息治疗实践;以及关于提供姑息治疗教育的建议。

结果

分别有52名(60%)住院医师和44名(62%)研究员完成了调查。住院医师和研究员表示在姑息治疗方面的培训、经验、知识、能力和舒适度处于无到中等水平。大多数受访者表示他们将从更正规的姑息治疗培训中受益。受访者认为讨论预后、传达坏消息和疼痛控制是需要教育的三个最重要领域。了解在精神上支持家庭以及对医生的情感支持是被认为最不重要的教育领域之一。受访者建议通过观察、床边教学和参与多学科小组来进行教育。

结论

需要努力改进儿科姑息治疗教育。姑息治疗团队可以通过让受训者参与“现实生活”中的互动来促进姑息治疗教育。医生在提供精神支持方面的作用以及对医生进行自我情感支持教育的必要性值得进一步研究。

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本文引用的文献

1
Pediatric resident education in palliative care: a needs assessment.儿科住院医师姑息治疗教育:需求评估
Pediatrics. 2006 Jun;117(6):1949-54. doi: 10.1542/peds.2005-1111.
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Deaths: final data for 2003.死亡情况:2003年最终数据。
Natl Vital Stat Rep. 2006 Apr 19;54(13):1-120.
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Improving the quality of end-of-life care in the pediatric intensive care unit: parents' priorities and recommendations.提高儿科重症监护病房临终关怀质量:家长的优先事项和建议。
Pediatrics. 2006 Mar;117(3):649-57. doi: 10.1542/peds.2005-0144.
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Clinical practice guidelines for quality palliative care.优质姑息治疗临床实践指南。
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End-of-life care in the curriculum: a national study of medical education deans.课程中的临终关怀:一项针对医学教育院长的全国性研究。
Acad Med. 2004 Aug;79(8):760-8. doi: 10.1097/00001888-200408000-00011.
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Pediatric palliative care.儿童姑息治疗。
N Engl J Med. 2004 Apr 22;350(17):1752-62. doi: 10.1056/NEJMra030334.
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Family perspectives on the quality of pediatric palliative care.家庭对儿童姑息治疗质量的看法。
Arch Pediatr Adolesc Med. 2002 Jan;156(1):14-9. doi: 10.1001/archpedi.156.1.14.
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Professional education in end-of-life care: a US perspective.临终关怀专业教育:美国视角
J R Soc Med. 2001 Sep;94(9):472-6; discussion 477-8. doi: 10.1177/014107680109400916.
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Deaths attributed to pediatric complex chronic conditions: national trends and implications for supportive care services.归因于儿童复杂慢性病的死亡:全国趋势及对支持性护理服务的影响
Pediatrics. 2001 Jun;107(6):E99. doi: 10.1542/peds.107.6.e99.
10
Longitudinal study of pediatric house officers' attitudes toward death and dying.儿科住院医师对死亡和临终态度的纵向研究。
Crit Care Med. 2000 Nov;28(11):3740-5. doi: 10.1097/00003246-200011000-00036.