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对爱尔兰西部一个郡18至65岁患者获得性脑损伤(ABI)患病率的全科医疗数据进行的邮政调查。

A postal survey of data in general practice on the prevalence of Acquired Brain Injury (ABI) in patients aged 18-65 in one county in the west of Ireland.

作者信息

Finnerty Fionnuala, Glynn Liam, Dineen Brendan, Colfer Finbarr, Macfarlane Anne

机构信息

Department of Medical and Social Care Education Medical School, Leicester, LE 1 9HN, UK.

出版信息

BMC Fam Pract. 2009 May 19;10:36. doi: 10.1186/1471-2296-10-36.

Abstract

BACKGROUND

Very little is known about the prevalence of acquired brain injury (ABI) in Ireland. ABI prevalence has previously been obtained from Belgian general practitioners using a postal survey. We attempted to ascertain the prevalence of ABI in County Mayo through a postal survey of all general practitioners in the county.The specific objectives of this project were to:1. identify whether general practitioners are a. aware of patients with ABI aged 18-65 in their practices b. able to provide prevalence data on ABI in patients aged 18-65 c. able to provide data on age, gender and patient diagnosis 2. analyse prevalence of ABI from any available data from general practitioners.

METHODS

A pilot postal survey was performed initially in order to assess the feasibility of the study. It was established that general practitioners did have the necessary information required to complete the questionnaire. A main postal survey was then undertaken. A postal questionnaire was administered to all general practices in County Mayo in the west of Ireland (n = 59). The response rate was 32.2% (n = 19).

RESULTS

General practitioners who replied on behalf of their practice could provide data on patient age, gender and diagnosis. In the nineteen practices, there were 57 patients with ABI. The age-specific prevalence of ABI in the area surveyed was estimated at 183.7 per 100,000. The mean patient population per practice was 2,833 (SD = 950). There were found to be significantly more patients with ABI in rural areas than urban areas (p = 0.006). There were also significant differences in the ages of patients in the different ABI categories. Patients whose ABI was of traumatic origin were significantly younger than those patients with ABI of haemorrhagic origin (p = 0.002).

CONCLUSION

Although this is a small-scale study, we have ascertained that general practitioners do have data on patients with ABI. Also, some prevalence data now exist where none was available before. These can be used to form the basis of a more substantial programme of university/community partnership research which could provide medical and psychosocial benefits for people with ABI and their families.

摘要

背景

爱尔兰后天性脑损伤(ABI)的患病率鲜为人知。此前,比利时的全科医生通过邮政调查得出了ABI的患病率。我们试图通过对梅奥郡所有全科医生进行邮政调查来确定该郡ABI的患病率。本项目的具体目标如下:

  1. 确定全科医生是否:

a. 知晓其诊所中年龄在18至65岁的ABI患者;

b. 能够提供18至65岁患者中ABI的患病率数据;

c. 能够提供有关年龄、性别和患者诊断的数据。

  1. 根据全科医生提供的任何可用数据分析ABI的患病率。

方法

最初进行了一次试点邮政调查,以评估该研究的可行性。结果表明,全科医生确实拥有完成问卷所需的必要信息。随后开展了主要的邮政调查。向爱尔兰西部梅奥郡的所有全科诊所发放了邮政问卷(n = 59)。回复率为32.2%(n = 19)。

结果

代表其诊所回复的全科医生能够提供患者的年龄、性别和诊断数据。在这19家诊所中,有57名ABI患者。调查区域内ABI的年龄特异性患病率估计为每10万人中有183.7例。每家诊所的平均患者人数为2833人(标准差 = 950)。结果发现,农村地区的ABI患者明显多于城市地区(p = 0.006)。不同ABI类别患者的年龄也存在显著差异。创伤性起源的ABI患者明显比出血性起源的ABI患者年轻(p = 0.002)。

结论

尽管这是一项小规模研究,但我们已确定全科医生确实掌握ABI患者的数据。此外,现在有了一些以前没有的患病率数据。这些数据可用于形成一个更具规模的大学/社区合作研究项目的基础,该项目可为ABI患者及其家庭带来医疗和心理社会方面的益处。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/fcbd/2695423/0542e53b47cb/1471-2296-10-36-1.jpg

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