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Clin Transplant. 2009 Aug-Sep;23(4):537-45. doi: 10.1111/j.1399-0012.2009.00992.x. Epub 2009 May 18.
2
Long-Term Follow-up of a Randomized Controlled Trial Evaluating a Mobile Health Intervention for Self-Management in Lung Transplant Recipients.一项评估移动健康干预对肺移植受者自我管理作用的随机对照试验的长期随访
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Impact of a Mobile Health Intervention on Long-term Nonadherence After Lung Transplantation: Follow-up After a Randomized Controlled Trial.移动医疗干预对肺移植后长期不依从的影响:一项随机对照试验的随访。
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J Med Internet Res. 2016 Apr 17;18(5):e91. doi: 10.2196/jmir.5256.
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Trajectories of self-care agency and associated factors in lung transplant recipients over the first 12 months following transplantation.肺移植受者术后12个月内自我护理能力轨迹及相关因素
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Dtsch Arztebl Int. 2023 Jun 16;120(24):413-416. doi: 10.3238/arztebl.m2023.0087.
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Readiness for implementation of novel digital health interventions for postoperative monitoring: a systematic review and clinical innovation network analysis.准备实施新型数字健康干预措施进行术后监测:系统评价和临床创新网络分析。
Lancet Digit Health. 2023 May;5(5):e295-e315. doi: 10.1016/S2589-7500(23)00026-2.
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Interventions for increasing immunosuppressant medication adherence in solid organ transplant recipients.提高实体器官移植受者免疫抑制剂药物依从性的干预措施。
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Efficacy of Adherence-Enhancing Interventions for Immunosuppressive Therapy in Solid Organ Transplant Recipients: A Systematic Review and Meta-Analysis Based on Randomized Controlled Trials.实体器官移植受者免疫抑制治疗依从性增强干预措施的疗效:基于随机对照试验的系统评价和荟萃分析
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Remote Therapy to Improve Outcomes in Lung Transplant Recipients: Design of the INSPIRE-III Randomized Clinical Trial.远程治疗改善肺移植受者的治疗效果:INSPIRE-III随机临床试验设计
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Impact of a Mobile Health Intervention on Long-term Nonadherence After Lung Transplantation: Follow-up After a Randomized Controlled Trial.移动医疗干预对肺移植后长期不依从的影响:一项随机对照试验的随访。
Transplantation. 2020 Mar;104(3):640-651. doi: 10.1097/TP.0000000000002872.
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Design Thinking in Health Care.医疗保健中的设计思维。
Prev Chronic Dis. 2018 Sep 27;15:E117. doi: 10.5888/pcd15.180128.
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Current state of pediatric cardiac transplantation.小儿心脏移植的现状
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A systematic review of immunosuppressant adherence interventions in transplant recipients: Decoding the streetlight effect.对移植受者免疫抑制剂依从性干预措施的系统评价:解读路灯效应。
Pediatr Transplant. 2018 Feb;22(1). doi: 10.1111/petr.13086. Epub 2017 Dec 7.
10
Designing a Self-Management App for Young People With Type 1 Diabetes: Methodological Challenges, Experiences, and Recommendations.为 1 型糖尿病青少年设计自我管理应用程序:方法学挑战、经验与建议
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本文引用的文献

1
Gender differences in patterns of emotional distress following heart transplantation.心脏移植后情绪困扰模式的性别差异。
J Clin Psychol Med Settings. 1996 Dec;3(4):367-86. doi: 10.1007/BF01994020.
2
User-centered design and interactive health technologies for patients.以患者为中心的设计与面向患者的交互式健康技术。
Comput Inform Nurs. 2009 May-Jun;27(3):175-83. doi: 10.1097/NCN.0b013e31819f7c7c.
3
Meta-analysis of risk for relapse to substance use after transplantation of the liver or other solid organs.肝脏或其他实体器官移植后物质使用复发风险的荟萃分析。
Liver Transpl. 2008 Feb;14(2):159-72. doi: 10.1002/lt.21278.
4
Adherence to the medical regimen during the first two years after lung transplantation.肺移植术后头两年对医疗方案的依从性。
Transplantation. 2008 Jan 27;85(2):193-202. doi: 10.1097/TP.0b013e318160135f.
5
Rates and risk factors for nonadherence to the medical regimen after adult solid organ transplantation.成人实体器官移植后医疗方案不依从的发生率及危险因素。
Transplantation. 2007 Apr 15;83(7):858-73. doi: 10.1097/01.tp.0000258599.65257.a6.
6
Authorship issues related to software tools.与软件工具相关的作者身份问题。
J Am Med Inform Assoc. 2007 Jan-Feb;14(1):132-3. doi: 10.1197/jamia.m2305.
7
Early detection of chronic pulmonary allograft dysfunction by exhaled biomarkers.通过呼出生物标志物早期检测慢性肺移植功能障碍
Am J Respir Crit Care Med. 2007 Apr 1;175(7):731-6. doi: 10.1164/rccm.200609-1301OC. Epub 2007 Jan 18.
8
Registry of the International Society for Heart and Lung Transplantation: twenty-third official adult lung and heart-lung transplantation report--2006.国际心肺移植学会登记处:2006年第23份成人肺与心肺联合移植官方报告
J Heart Lung Transplant. 2006 Aug;25(8):880-92. doi: 10.1016/j.healun.2006.06.001.
9
Are symptom reports useful for differentiating between acute rejection and pulmonary infection after lung transplantation?症状报告对区分肺移植术后急性排斥反应和肺部感染是否有用?
Heart Lung. 2004 Nov-Dec;33(6):372-80. doi: 10.1016/j.hrtlng.2004.05.001.
10
Striving for normalcy: symptoms and the threat of rejection after lung transplantation.追求正常状态:肺移植后的症状与排斥反应的威胁
Soc Sci Med. 2004 Oct;59(7):1473-84. doi: 10.1016/j.socscimed.2004.01.013.

评估一种基于计算机的手持式干预措施对促进肺移植后早期自我护理行为的作用。

Evaluation of a hand-held, computer-based intervention to promote early self-care behaviors after lung transplant.

作者信息

DeVito Dabbs Annette, Dew Mary Amanda, Myers Brad, Begey Alex, Hawkins Robert, Ren Dianxu, Dunbar-Jacob Jacqueline, Oconnell Erin, McCurry Kenneth R

机构信息

School of Nursing, University of Pittsburgh, Pittsburgh, PA, USA.

出版信息

Clin Transplant. 2009 Aug-Sep;23(4):537-45. doi: 10.1111/j.1399-0012.2009.00992.x. Epub 2009 May 18.

DOI:10.1111/j.1399-0012.2009.00992.x
PMID:19473201
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC3049312/
Abstract

BACKGROUND

Lung transplant recipients are expected to perform self-care behaviors to maximize transplant-related health outcomes. Despite high non-adherence rates in performing these self-care behaviors, and the dire clinical consequences of such non-adherence, interventions are lacking. Pocket Personal Assistant for Tracking Health (Pocket PATH) is a hand-held device developed for patients to record health data, review data trends, and report condition changes to the transplant team.

METHODS

A pilot trial was conducted to compare self-care agency, self-care behaviors, and health-related quality of life (HRQOL) between recipients randomized to use Pocket PATH (n = 15) vs. standard care (n = 15) for the first two months following hospital discharge after lung transplantation.

RESULTS

Baseline characteristics were equivalent across groups. Patients in the Pocket PATH group showed significantly higher ratings of self-care agency, performed self-care behaviors at significantly higher rates, and reported significantly better HRQOL than standard care controls.

CONCLUSION

Pocket PATH is more efficacious than standard care in promoting early self-care agency, self-care behaviors, and HRQOL in lung recipients. A large-scale randomized controlled trial is needed to test the impact of Pocket PATH on long-term self-care behaviors.

摘要

背景

肺移植受者需要进行自我护理行为,以最大程度地提高与移植相关的健康结局。尽管在执行这些自我护理行为时不依从率很高,且这种不依从会带来严重的临床后果,但目前仍缺乏相关干预措施。“健康追踪袖珍个人助理”(Pocket PATH)是一种为患者开发的手持设备,用于记录健康数据、查看数据趋势并向移植团队报告病情变化。

方法

进行了一项试点试验,比较肺移植出院后头两个月内随机分配使用Pocket PATH的受者(n = 15)与接受标准护理的受者(n = 15)之间的自我护理能力、自我护理行为和健康相关生活质量(HRQOL)。

结果

各组的基线特征相当。Pocket PATH组的患者在自我护理能力方面的评分显著更高,自我护理行为的执行率显著更高,并且报告的HRQOL比标准护理对照组显著更好。

结论

在促进肺移植受者的早期自我护理能力、自我护理行为和HRQOL方面,Pocket PATH比标准护理更有效。需要进行大规模随机对照试验来测试Pocket PATH对长期自我护理行为的影响。