DeVito Dabbs Annette, Dew Mary Amanda, Myers Brad, Begey Alex, Hawkins Robert, Ren Dianxu, Dunbar-Jacob Jacqueline, Oconnell Erin, McCurry Kenneth R
School of Nursing, University of Pittsburgh, Pittsburgh, PA, USA.
Clin Transplant. 2009 Aug-Sep;23(4):537-45. doi: 10.1111/j.1399-0012.2009.00992.x. Epub 2009 May 18.
Lung transplant recipients are expected to perform self-care behaviors to maximize transplant-related health outcomes. Despite high non-adherence rates in performing these self-care behaviors, and the dire clinical consequences of such non-adherence, interventions are lacking. Pocket Personal Assistant for Tracking Health (Pocket PATH) is a hand-held device developed for patients to record health data, review data trends, and report condition changes to the transplant team.
A pilot trial was conducted to compare self-care agency, self-care behaviors, and health-related quality of life (HRQOL) between recipients randomized to use Pocket PATH (n = 15) vs. standard care (n = 15) for the first two months following hospital discharge after lung transplantation.
Baseline characteristics were equivalent across groups. Patients in the Pocket PATH group showed significantly higher ratings of self-care agency, performed self-care behaviors at significantly higher rates, and reported significantly better HRQOL than standard care controls.
Pocket PATH is more efficacious than standard care in promoting early self-care agency, self-care behaviors, and HRQOL in lung recipients. A large-scale randomized controlled trial is needed to test the impact of Pocket PATH on long-term self-care behaviors.
肺移植受者需要进行自我护理行为,以最大程度地提高与移植相关的健康结局。尽管在执行这些自我护理行为时不依从率很高,且这种不依从会带来严重的临床后果,但目前仍缺乏相关干预措施。“健康追踪袖珍个人助理”(Pocket PATH)是一种为患者开发的手持设备,用于记录健康数据、查看数据趋势并向移植团队报告病情变化。
进行了一项试点试验,比较肺移植出院后头两个月内随机分配使用Pocket PATH的受者(n = 15)与接受标准护理的受者(n = 15)之间的自我护理能力、自我护理行为和健康相关生活质量(HRQOL)。
各组的基线特征相当。Pocket PATH组的患者在自我护理能力方面的评分显著更高,自我护理行为的执行率显著更高,并且报告的HRQOL比标准护理对照组显著更好。
在促进肺移植受者的早期自我护理能力、自我护理行为和HRQOL方面,Pocket PATH比标准护理更有效。需要进行大规模随机对照试验来测试Pocket PATH对长期自我护理行为的影响。