Bianco Margarita, Garrison-Wade Dorothy F, Tobin Romie, Lehmann Jean P
University of Colorado Denver, School of Education and Human Development, Denver, CO, USA.
Intellect Dev Disabil. 2009 Jun;47(3):186-96. doi: 10.1352/1934-9556-47.3.186.
This qualitative study investigated parents' perceptions of the various roles they played in their adult children's lives during the post-high school years. Individual face-to-face interviews were conducted with 9 families of young adults with developmental disabilities. Findings indicated that families perceived the complexity of their roles as balancing between advocating for their adult children's needs while promoting independence and self-determination. The roles parents assumed as their children entered into adult life were those of collaborators, decision makers, and program evaluators, role models, trainers, mentors and instructors, and systems change agents. Parents often felt they were the safety net for their children and the back-up plan for service agencies. Parents' quotes illustrated the complexity of the roles they played as their young adult children with developmental disabilities entered adulthood.
这项定性研究调查了父母对他们在孩子高中毕业后的成年生活中所扮演的各种角色的看法。对9个有发育障碍的年轻成年人家庭进行了个人面对面访谈。研究结果表明,家庭认为他们角色的复杂性在于在倡导成年子女的需求与促进其独立性和自决权之间取得平衡。随着孩子进入成年生活,父母承担的角色包括合作者、决策者、项目评估者、榜样、培训师、导师和指导教师,以及系统变革推动者。父母常常觉得他们是孩子的安全网,也是服务机构的后备方案。父母的话语说明了当他们有发育障碍的成年子女步入成年期时,他们所扮演角色的复杂性。