Agarwal Rumi, Wuyke Gabriella, Sharma Utsav, Burke Shanna L, Howard Melissa, Li Tan, Sanchez Mariana, Bastida Elena
FIU Embrace, Florida International University, 11200 SW 8th Street, Miami, FL 33199 USA.
Department of Health Promotion & Disease Prevention, Robert Stempel College of Public Health and Social Work, Florida International University, 11200 SW 8th Street, Miami, FL 33199 USA.
Rev J Autism Dev Disord. 2022 Sep 1:1-23. doi: 10.1007/s40489-022-00340-8.
The period between adolescence to young adulthood can be stressful for parents of transition-aged children (14 to 22 years old) with autism spectrum disorder. A systematic review was undertaken to examine if existing interventions address the unique parental stressors of this phase and if the scales used to measure parental stress and anxiety are suitable for this group. Of the 9813 studies screened, only 13 studies met the inclusion criteria. Findings indicated that interventions focused on mindfulness, social functioning, or multiple components, of which only two addressed the transition period and only three specifically targeted parents of this age group. Moreover, of the six scales which assessed stress or anxiety, none were designed for these parents. Findings highlight the urgent need for more suitable scales and targeted interventions.
对于患有自闭症谱系障碍的过渡年龄儿童(14至22岁)的父母来说,从青春期到成年早期这段时间可能压力重重。本研究进行了一项系统综述,以检验现有干预措施是否能解决这一阶段父母所面临的独特压力源,以及用于测量父母压力和焦虑的量表是否适用于该群体。在筛选的9813项研究中,只有13项研究符合纳入标准。研究结果表明,干预措施主要集中在正念、社交功能或多个方面,其中只有两项涉及过渡阶段,只有三项专门针对这个年龄段的父母。此外,在评估压力或焦虑的六个量表中,没有一个是为这些父母设计的。研究结果凸显了对更合适的量表和针对性干预措施的迫切需求。