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Stress and Anxiety Among Parents of Transition-Aged Children with Autism Spectrum Disorder: a Systematic Review of Interventions and Scales.患有自闭症谱系障碍的过渡年龄儿童的父母的压力与焦虑:干预措施和量表的系统综述
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Social support and family quality of life in Chinese families of children with autism spectrum disorder: the mediating role of family cohesion and adaptability.中国自闭症谱系障碍儿童家庭中的社会支持与家庭生活质量:家庭凝聚力和适应性的中介作用
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“潜力无限”:职业培训对泰国神经发育障碍患者照料者期望的影响

"Capable of much more": The effects of vocational training on caregiver expectations for neurodivergent dependents in Thailand.

作者信息

Mallory Drew B

机构信息

Sasin School of Management, Chulalongkorn University, Bangkok, Thailand.

出版信息

PLoS One. 2024 Jul 17;19(7):e0306141. doi: 10.1371/journal.pone.0306141. eCollection 2024.

DOI:10.1371/journal.pone.0306141
PMID:39018265
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11253951/
Abstract

Neurodivergence encompasses a spectrum of natural variations in neurological development, including autism, ADHD, and other expressions of cognitive diversity. Caregiver experiences while supporting their neurodivergent dependents critically influence the quality of life outcomes for neurodivergent dependents across life stages, including during the search for work. However, research on caregiver experiences during this stage remains scarce, especially within lesser studied developing contexts like Thailand. This study explored perspectives of Thai caregivers preparing neurodivergent dependents for employment through a focus group (n = 10) of pre-vocational training caregivers and interviews (n = 13) with post-training caregivers. Analysis revealed significant sociocultural factors introducing stigma that affected acceptance, diagnosis, interventions, and policy support. Both groups reported systemic barriers, doubts about future independence, and hopes to increase advocacy and inclusive attitudes. However, caregivers whose dependents had received the training showed marked shifts in their expectations for their dependents' success. Tailored vocational preparation helping dependents exhibit strengths may transform societal views on neurodiversity from deficiency to natural diversity and enable more meaningful, sustainable futures. These insights elucidate caregiver challenges and aspirations, which can better inform supportive research and interventions in Thailand and other non-Western locales.

摘要

神经多样性涵盖了神经发育方面一系列自然变化,包括自闭症、注意力缺陷多动障碍以及其他认知多样性表现。照顾神经发育差异者的照顾者的经历,对神经发育差异者在包括求职阶段在内的各个生命阶段的生活质量结果有着至关重要的影响。然而,关于这一阶段照顾者经历的研究仍然匮乏,尤其是在像泰国这样较少被研究的发展中背景下。本研究通过一个针对职业前培训照顾者的焦点小组(n = 10)以及对培训后照顾者的访谈(n = 13),探讨了泰国照顾者为神经发育差异者就业做准备的观点。分析揭示了存在污名化的重大社会文化因素,这些因素影响了接纳、诊断、干预和政策支持。两组都报告了系统性障碍、对未来独立性的疑虑以及增加宣传和包容态度的希望。然而,其受照顾者接受过培训的照顾者对其受照顾者成功的期望有了显著转变。帮助受照顾者展现优势的量身定制的职业准备,可能会将社会对神经多样性的看法从缺陷转变为自然多样性,并实现更有意义、可持续的未来。这些见解阐明了照顾者的挑战和愿望,可为泰国及其他非西方地区的支持性研究和干预提供更好的参考。