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印度有智力残疾子女的父母的需求。

Needs of Indian parents having children with intellectual disability.

作者信息

Verma Rajesh K, Kishore M Thomas

机构信息

NIMH Regional Centre, Bonhooghly, Kolkata, India.

出版信息

Int J Rehabil Res. 2009 Mar;32(1):71-6. doi: 10.1097/MRR.0b013e32830d36b6.

Abstract

Disability in children gives rise to various needs in parents, which may vary according to the nature of disability and parental characteristics. Cross-cultural findings will help in understanding the process of meeting those needs, which ultimately help in designing appropriate interventions. The main objectives of the study were to compare the perceived needs of fathers and mothers having a child with intellectual disability, and to understand their cumulative needs with reference to the age, sex, and severity of functional disability of the child. Thirty couples, each having a child with intellectual disability, were assessed with the NIMH Family Needs Schedule. The needs expressed by fathers and mothers differed significantly. Needs of the parents varied according to the age and sex of the child. Severity of intellectual disability had less impact on the nature of parental needs. The needs of mothers and fathers can be different. Some needs of the parents may subside as their intellectually disabled child grows, but they are duly replaced by others. Needs of the parents grossly vary according to the sex but not the severity of intellectual disability of the child. Wherever applicable, family intervention should focus on the needs of the mothers and fathers separately with due consideration to the sex and age of the child.

摘要

儿童残疾会引发父母的各种需求,这些需求可能因残疾的性质和父母的特征而有所不同。跨文化研究结果将有助于理解满足这些需求的过程,这最终有助于设计适当的干预措施。该研究的主要目的是比较有智力残疾孩子的父亲和母亲所感知到的需求,并参照孩子的年龄、性别和功能残疾的严重程度来了解他们的累积需求。30对夫妻,每对夫妻都有一个智力残疾的孩子,使用美国国立精神卫生研究所家庭需求量表进行了评估。父亲和母亲表达的需求有显著差异。父母的需求因孩子的年龄和性别而异。智力残疾的严重程度对父母需求的性质影响较小。母亲和父亲的需求可能不同。随着他们智力残疾的孩子成长,父母的一些需求可能会消退,但会被其他需求适时取代。父母的需求因孩子的性别而非智力残疾的严重程度而有很大差异。在适用的情况下,家庭干预应分别关注母亲和父亲的需求,并适当考虑孩子的性别和年龄。

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