School of Nursing, University of California-Los Angeles, Los Angeles, CA 90095, USA.
Gerontologist. 2010 Apr;50(2):204-14. doi: 10.1093/geront/gnp116. Epub 2009 Aug 3.
To describe caregivers' constructions of their caregiving role in providing care to elders they knew were dying from life-limiting illnesses.
Study involved in-depth interviews with 27 family caregivers. Data were analyzed using constant comparative analysis.
Four categories were identified: centering life on the elder, maintaining a sense of normalcy, minimizing suffering, and gift giving. Generative caregiving was the term adopted to describe the end-of-life (EOL) caregiving role. Generative caregiving is situated in the present with a goal to enhance the elder's present quality of life, but also draws from the past and projects into the future with a goal to create a legacy that honors the elder and the elder-caregiver relationship.
Results contribute to our knowledge about EOL caregiving by providing an explanatory framework and setting the caregiving experience in the context of life-span development.
描述照顾者在照顾患有绝症的老年人时对其照顾角色的建构。
本研究对 27 名家庭照顾者进行了深入访谈。采用恒定性比较分析对数据进行分析。
确定了四个类别:以老年人为中心、保持常态感、最小化痛苦和给予礼物。赋予生命的照顾被用来描述临终(EOL)照顾角色。赋予生命的照顾立足于当下,旨在提高老年人的当下生活质量,但也借鉴过去并投射到未来,旨在创造一个尊重老年人和老年照顾者关系的遗产。
研究结果通过提供解释框架并将照顾经验置于生命周期发展的背景下,为我们对临终关怀的认识做出了贡献。