癌症的隐性发病率：脑转移患者照料者的负担
The Hidden Morbidity of Cancer: Burden in Caregivers of Patients with Brain Metastases.
作者信息
Saria Marlon Garzo, Nyamathi Adeline, Phillips Linda R, Stanton Annette L, Evangelista Lorraine, Kesari Santosh, Maliski Sally
机构信息
Clinical Trials and Research, John Wayne Cancer Institute, Providence Saint John's Health Center, University of California, Los Angeles, School of Nursing, 2200 Santa Monica Boulevard, Santa Monica, CA 90404, USA.
University of California, Los Angeles, School of Nursing, 700 Tiverton Avenue, Los Angeles, CA 90095, USA.
出版信息
Nurs Clin North Am. 2017 Mar;52(1):159-178. doi: 10.1016/j.cnur.2016.10.002.
Abstract
Caregiving is a highly individualized experience. Although numerous articles have been published on caregiver burden from a variety of diagnoses and conditions, this article presents the unique features of caregiving in patients with brain metastases. Improved long-term survival, concerns about disease recurrence or progression, the cancer experience (initial diagnosis, treatment, survivorship, recurrence, progression, and end of life), and the increasing complexity of cancer treatments add to the demands placed on the caregivers of patients with brain metastases. Health care professionals must identify caregiver burden and administer the appropriate interventions, which must be as unique and individualized as the caregivers' experiences.
摘要
照护是一种高度个体化的体验。尽管已经发表了大量关于各种诊断和病症导致的照护负担的文章，但本文呈现了脑转移瘤患者照护的独特特征。长期生存率的提高、对疾病复发或进展的担忧、癌症经历（初始诊断、治疗、生存、复发、进展及生命终结）以及癌症治疗日益增加的复杂性，都增加了对脑转移瘤患者照护者的要求。医疗保健专业人员必须识别照护者的负担并实施适当的干预措施，这些干预措施必须与照护者的经历一样独特且个体化。
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本文引用的文献
1
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Gerontologist. 2017 Aug 1;57(4):648-656. doi: 10.1093/geront/gnw054.
2
Caring for caregivers and patients: Research and clinical priorities for informal cancer caregiving.关爱照护者与患者：癌症非正规照护的研究与临床重点
Cancer. 2016 Jul 1;122(13):1987-95. doi: 10.1002/cncr.29939. Epub 2016 Mar 17.
3
Neuro-oncology family caregivers are at risk for systemic inflammation.神经肿瘤学患者的家庭护理人员存在全身性炎症风险。
J Neurooncol. 2016 May;128(1):109-118. doi: 10.1007/s11060-016-2083-3. Epub 2016 Feb 23.
4
Associations between advanced cancer patients' survival and family caregiver presence and burden.晚期癌症患者的生存与家庭照顾者的陪伴及负担之间的关联。
Cancer Med. 2016 May;5(5):853-62. doi: 10.1002/cam4.653. Epub 2016 Feb 10.
5
Family Perspectives on Aggressive Cancer Care Near the End of Life.家庭对临终前积极癌症治疗的看法。
JAMA. 2016 Jan 19;315(3):284-92. doi: 10.1001/jama.2015.18604.
6
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7
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J Am Med Dir Assoc. 2016 Mar 1;17(3):232-7. doi: 10.1016/j.jamda.2015.10.011. Epub 2015 Nov 24.
8
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Monitoring and optimising cognitive function in cancer patients: Present knowledge and future directions.癌症患者认知功能的监测与优化：当前认知与未来方向
EJC Suppl. 2014 Jun;12(1):29-40. doi: 10.1016/j.ejcsup.2014.03.003. Epub 2014 May 29.
10
Current Perspectives in the Management of Brain Metastases.脑转移瘤管理的当前观点
Clin J Oncol Nurs. 2015 Aug;19(4):475-9. doi: 10.1188/15.CJON.475-478.
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